Third: Personal Testimonial Series

THIRD: PERSONAL TESTIMONIAL SERIES, 1-3

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When we,
any of us who have been transformed by Christ,
tell our own stories,
we’re telling the story of who God is.

~Shauna Niequist, Bittersweet, p238~
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~today we will hear from the hearts of Louise, Carolina, Rachel~

Ladies, thank you for sharing these glimpses into your lives,
these windows into your hearts.
Thank you for giving me personally an opportunity to see where you suffer,
to see where the Lord is working,
to see where my prayers can be directed & my hands may serve.
Thank you for suffering with grace, joy, endurance, and dignity.
Please know that you and your families
are particularly in my prayers this week.

 

1. What kind of ministry(ies) does your church have for those who have chronic needs?

Louise~ Our church supplies meals more than any church I have ever been a part of – it is amazing. They never ask questions like, “shouldn’t you be done needing this by now?” It is phenomenal. Praise the Lord for this. I couldn’t be more thankful.

Carolina~ We are blessed with a church that preaches and teaches the truth of scripture week in and week out without a worry, but they have no idea how to help families with chronic needs—and it isn’t because we haven’t asked.
Our church does not have a ministry set up for chronic needs; although they have tried, it hasn’t worked yet. They have said they will jump in a crisis like if one of us were in the hospital, had lots of nights in the ER, so on and so forth. They are amazing at jumping in when there is something acute like that, but what they don’t realize is that I’m pretty much in a crisis every other day. If I have a long doctor’s appointment I’m usually down and out for a few days and very sick that night, so it would be nice for my husband to have some freezer meals on nights like that. We have a church of 500 people and I know they don’t want people to get burnt out with making meals each week, but it’s not sinking in that my husband is hanging by a string being both mom and dad, and it grieves me to see him so exhausted! I know this could be the issue anywhere we go, but as a chronically ill mommy, I’m seeing a huge gap in people having no clue how to help—it makes me want to jump in and teach.
I have heard it said that chronic needs become a normal part of a person’s life which needs to be figured out by those individuals in order not to burn out those in the church who are helping. However I don’t believe this is biblical and this is probably an area where our individualistic culture in America has bled into the American church and told us that people are to pull themselves up by their own bootstraps and not expect handouts or freebies, and expecting such means you are lazy rather than hard working. Paul tells us why not rather be defrauded and to bear one another’s burdens—and Christ tells us when someone asks for something, to give more. The early church in Jerusalem had a system set up where everyone brought their resources together and it was distributed back out to the brethren according to their needs. It would be naive and too American to believe this just refers to critical sudden needs that are not ongoing.
I have poured my heart out of my need for help—with my kids, meals, groceries, and my longing for an older Titus 2 type woman or pastor’s wife to check on me weekly (even if it was just a call or prayer over the phone for emotional & spiritual support). When I was asked about freezer meals, I said two a week would be amazing but even one would be a huge blessing; but we were told this was too much to ask for the church to do indefinitely. We are thankful for a very few women who have sacrificed their time, and even asked my forgiveness for not realizing we are in true need sooner! We are thankful for these families that have given of themselves.
The Church seems to want to help spiritually but they don’t know how at times and give up. Helping people with chronic needs is messy, painful, and takes great sacrifice. I’m sure we can find many Scriptures that teach us just that.  Romans 12:1-2 comes to my mind, because our pastor preached about using our bodies as sacrifices to others, in serving the weaker brother.

Rachel~ Nothing specific is set up. A few times someone has given me a meal, one of which was recently when I was dealing with something that would fall under “critical illness/need.”

 

2. What kind of specific things would you find personally helpful for your church body to step up for?

Louise~ Our church has offered us anything we need. I think of how in a time of great need, our church supplied ladies to come and stay with us for extended periods of time. Praise the Lord for this! It was so beautiful.

Carolina~ So many specific things would be extremely helpful while keeping in mind the family with these needs should have an individualized plan that is approved by the family in order to implement it in a way that is helpful rather than more stressful. One thing we find difficult is that many times the same few people who want to help have many needs of their own and are the only ones helping—they are getting burnt out while those with no needs are getting fat on life. One of our pastors said we cannot use busyness as an excuse—God will not take that excuse on judgement day. Many of us waste time on Facebook, watching stupid television shows (many of which we would be too embarrassed to invite Jesus over to watch with us), or doing too many things that are good in and of themselves but we are using them to avoid obedience to Romans chapter 12 verses 1 through 2.  This mentality must be defeated through direct preaching, good examples set by those who help, and much prayer. I think people are amazing if someone is dying: they just give and give until that person dies, and the same way if someone has cancer and gets better. But as someone that has multiple chronic diseases that I will most likely have forever on this side of heaven—people have no clue!

Rachel~ I had two people just recently ask if I needed housecleaning or meals set up through Helping Hands (where people can sign up to give a meal – used for critical needs). But I was caught off guard and didn’t voice my thoughts that with my current dietary restrictions it felt too complicated, awkward, and inconvenient to have people give me meals. Alternatively, I’d love to have help prepping a bunch of meals to stock my freezer. That way I could figure out the recipes that fit my current dietary restrictions.
If we weren’t getting our house cleaned already, I would have taken that offer! When we had someone start cleaning our house weekly, I gained back the 3-4 days per week that I used to spend in bed recovering from cleaning the bathroom and vacuuming! That time regained helps alleviate some of the practical, emotional and relational challenges.
I am so thankful that I have found a doctor closer than my previous one, and that my husband is able to drive me. If that were not the case, I’d be in trouble, because sometimes I cannot safely drive.
Housecleaning, meals in some form, and transportation can be very important.
One creative way a friend blessed me was saying she had something for me and asked if she could stop by after she put the kids to bed. She showed up with cheerful gerbera daisies, a yard and home magazine, fancy cheese and crackers, and a chocolate bar. Then she stayed a bit and we talked about decorating and books. It was super fun, super sweet, and definitely something I remember fondly.
This spring I am once again reminded of another church families’ special, creative kindness to us. A gal and her daughter came over to our rental house and together they planted tulip and daffodil bulbs in the beds around our yard. Each spring I drink in the pink and yellow blooms. Their color and beauty brighten, refresh and enliven my world, helping make my home feel like a sanctuary.

 

3. What do you wish your church leaders knew about chronic need? In what specific ways would you be particularly blessed by your church leadership?

Louise~ I need to hear more of a message of hope and the power of the resurrection for vibrant living. Having a chronic illness makes me low emotionally, so I need to hear about my identity in Christ from the pulpit. I hear about my sin, my weaknesses, my shortcomings, but I need to hear about the victorious life I have in Christ—even if I am to live disabled for life and cannot accomplish 1/10th of what I think I should or want to. This would minister to me more than any physical thing. I need my self esteem to be built up so my eyes are put back on Jesus, the Author and Finisher of my faith—but in a positive light. I know that hard teaching creates soft hearts, but sometimes when life is hard day in & day out and our bodies waste away, I need to hear more good news from the pulpit. No holds bar—just the power of life in Christ—that it can be just victorious.

Carolina~ It should be a church burden not just an individual burden.
Prayer during the service would be good, and could be a continual reminder that there is a brother or sister that is prevented from being there with them every week.
A small study that is simple with little homework in the home of the sick person would be helpful: this should be with a few people that are completely trusted by the sick person. Also, don’t forget the caregivers (spouses), as they have very unique particular needs as well—It would be good for them to have a confidant.
Elders coming to lay hands and pray for healing, read Scripture, and try to strengthen the sick person’s face without lecturing, finger pointing, or being theologically nitpicky about the sick person’s words.
If you don’t know what to say, it’s okay: say you’re sorry, you just don’t know what to say. That lets the sick person know you recognize the gravity of their situation. It’s okay to be silent and just mourn. Job’s comforters were not considered miserable comforters while they were silent and wept for 7 days, but rather when they opened their mouths in response to Job’s painful expressions of grief.
It would be good for elders to read on chronic illnesses and for presentations to be given on suffering families’ needs and limitations so everyone will not jump to conclusions on what’s really wrong, then judge based on bad information or assumptions.

Rachel~ I make it to church most Sundays. If I didn’t, communion delivered would be welcome. (However, my first thought when I read that suggestion was that on some days I can’t even predict when I’ll be okay enough to shower, so setting a time for someone to come by with communion could be stressful. I guess if I was in that situation, we’d figure something out.)
Early on, I really appreciated my health being prayed for during corporate prayer (especially when we were at a bigger church and others’ specific health needs were being prayed for also). But at our newer, smaller church after a few months of medical answers being elusive and treatments having little effect, I can understand why they stopped. Illnesses with elusive diagnoses and treatments are awkward, so why keep praying for this or that treatment to hopefully work? (This shows the unintended ignorance about the other aspects of chronic needs.) I have learned, however, that I am not the only one with ongoing physical pain/needs. Someone has frequent bouts of migraines, another has Hashimoto’s and fatigue, one family has a handful of things they are dealing with. At least 5 of our 40-some adults have ongoing health difficulties.
One of the things I would most appreciate is prayer for us as a group—I don’t need to be singled out. To have our ongoing physical, emotional, relational and spiritual challenges bathed in prayer would be a huge encouragement!

 

4. What do you wish your friends and fellow congregants knew about asking how you are, praying for you, helping with practical needs, etc?

Louise~ Don’t ask how I am if you aren’t ready for a torrential rainstorm.
Don’t ask how I am if you are in the space to compare yourself with me.
Pain makes the flesh strong – it makes the spirit weak.
Don’t preach to me: when I read the book of Job, my first temptation is to think, “well, what Bildad or Zophar, or Eliphaz said sounds right: they were just defending God.” The fundamental problem was that they put themselves “on the same side of the table as God”—as one wise lady told me. God doesn’t need a defender—a falling brother needs a hand up. We are to run this race together, which disallows me from striving with you. I will stop running altogether if you judge me. Job’s counselors made it appear to Job as though they were on God’s side while he was across the table.
There is a helpful old saying by Samuel Taylor Coleridge: “Advice is like snow; the softer it falls the longer it dwells upon, and the deeper it sinks into, the mind.”
Don’t feel pity for me. Help me find a way to feel valuable. Help me find a way to be useful. Help me find a way to be a part of your life and needs—even though I am very limited. Don’t decide for me what I can or can’t do based off of what you think my family needs. That is for my husband and me to decide, not you. It only hurts and it isn’t helpful.

Carolina~ Don’t abandon your friends just because they can’t do all the fun things they used to be able to do.
If you are going to offer help, offer specific things that you know you can do to help instead of giving a blank cheque offer and later having to retract your offer, which can discourage the sick person. Even the small things help, like giving a kid a ride to school, dropping off takeout for dinner, calling on the phone for 5 minutes to pray for the sick person, offering to mow their lawn, taking the sick person’s kids over to your house for a playdate so the sick person and caregiver can take a break.
Give random money gifts if God is giving you extra as it is always safe to assume there are extra medical costs, and there is likely a shortage of money since chances are only the caregiver is working but missing some work to begin with to help the sick person on really bad days.
Be willing to accept the sick person’s new limitations and don’t expect him/her to be the way they used to be and do the things they used to do. This is who they are now, and we are called to accept that and help them in whatever way we can.
When you see a need, help be their voice to others (with their permission).
I am hurt and pushed when people don’t really know how sick I am and how much it hurts—that’s probably what I’m struggling with most of all right now.
We pray the Lord will use our pain and suffering to help others who are suffering, and also to educate others on how to help families with chronic needs. Many hands helping would make a lighter load for many families suffering with chronic illness or children with severe disabilities.

Rachel~ Realizing life with chronic illness is not well understood, I’ve begun talking about my challenges more with people I see on Sundays. Some seem to understand because they are dealing with something similar themselves. Others appear to think that since I am there and standing, I must be okay. Sometimes just getting out of bed and getting ready to go somewhere is an event in itself. They don’t know what it takes out of me to simply get out of the house.
“How are you?” can be difficult to answer. Do I say that I am not doing well; or that it’s been a hard week; or that I’ve been struggling emotionally, spiritually or physically, especially when it’s the same truthful answer week after week? Sometimes I sense the expectation that this time I should feel better. And what do I say when the truth would be that I just feel like quitting; or I’m feeling guilt and stress about not being able to meet my husband’s needs; or I just feel so alone in this? But the kindness of a genuine inquiry is endearing and builds confidence and trust.
A good way for someone to get a peek into the life of someone with chronic needs would be to ask “When you are feeling unwell, what does your day look like?” or “What is it like to live with your chronic illness on a daily or weekly basis?” Because there can be much loneliness, the sincerity of someone seeking to understand our situation can be encouraging in itself.
Chronic illness affects not only the individual who is physically afflicted, but also the spouse and family. We had no “honeymoon period.” Frequent bouts of being house- or bed-bound, coupled with low tolerance for sound, light, or touch during these times, and just scraping along with managing the home has greatly affected both the quality and quantity of our time spent together. My husband has the extra, often invisible, role of caretaker for me, as well as picking up the slack with household duties that I often cannot do.
If someone in the congregation has learned to live well with chronic illness or the pain of broken dreams, sharing that would be a gift to those of us who struggle daily with these challenges. Even while we continue to search for answers, I want to learn how to live well and be fruitful where God has placed me now. Is there someone who can teach us how to do that?
My husband says he struggles with empathy, not knowing what to do to help, nor understanding how my fatigue affects our physical relationship.
We don’t often initiate doing things with friends. I tend to hesitate because I’m not sure how I will be feeling when the time comes, or I’ve worn myself out trying to get caught up during a period of feeling okay. It has been hard on my husband to become somewhat disconnected from his friends. Since we don’t do much socially as a couple, he needs to get out of the house and meet up with a friend or two a couple times a month for some fun and refreshment.
For some with chronic illness, it is difficult to host but would be lovely if other couples initiated.

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~tomorrow we will continue the personal testimonial series,
hearing from the hearts of three more dear women~

In the meantime, would you join me in praying for the Lord to
reach His hands into these homes, touch these suffering saints, and uplift their souls by the power of His Spirit?
Pray for our church leaders to be full of grace, and speak the truth in love.
Pray for our congregants to spur one another on toward love and good deeds.
Pray for our burdens to be shared, and in so doing,
multiply the strength of our local church bodies.
Pray for eyes to be opened, hearts to be humbled,
bodies to be healed, tears to be bottled,
hands to work diligently, prayers to be offered as sweet sacrifices.

For the glory of Christ’s Kingdom
and for the blessing of His people
while we await His Heavenly Jerusalem
and in the meantime toil in His kingdom on earth.

Amen.

Good duties must not be pressed and beaten out of us,
as the waters came out of a rock when Moses smote it with his rod;
but must freely drop from us, as myrrh from the tree, or honey from the comb.
~Thomas Watson~

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~part of our series, Serving Those in The Church with Chronic Needs~

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Praising, Trusting, Surrendering, Loving

Your future includes manna.
It will come.
There is no sense devising future scenarios now
because God will do more than you anticipate.
When you understand God’s plan to give future grace,
you have access to what is arguably
God’s most potent salve against worry and fear.
~Ed Welch, Running Scared, p140~

I decided to trust that the God
who is in charge of my eternal life
could also be trusted with my everyday life.
~Myquillyn Smith, The Nesting Place, p181~

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~part of our series, Serving Those in The Church with Chronic Needs~

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Second: Resources, Opening My Eyes to See Chronic Suffering

SECOND: RESOURCES, OPENING MY EYES
TO SEE CHRONIC SUFFERING

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I wanted to pray but had no idea what to say,
as if struck dumb by my own pain.
Groans became the only language I could use,
if even that,
but I believed it was language enough for God to understand.
~Jerry Sittser, A Grace Disguised, p43~

When the Lord put it on my heart a month or two ago to begin praying more for my friends who have particular chronic suffering (which I myself have experienced in particular, probably smaller, forms), I wanted to know how to find out more. I googled for a lot of things. I went back to some books that encouraged me in my own forms of suffering (like grief or depression) to see how they might (or might not) be pertinent for people with chronic pain, chronic illness, mental illness, etc. I read Scriptures, especially Psalms, with these friends on my heart. I wrote some prayers with them in mind. And most importantly, I asked questions. I emailed my friends (as that is the way I tend to communicate with the majority of people, but particularly with these friends), asking them questions about their suffering, about what they need, about what help they receive, about how their husbands & families & church bodies encourage them. I received a variety of responses, and getting those specific glimpses into the hearts of these women (yes, these are all women who I know with these chronic needs… and all but one are married… all but two have children to care for…) gave me particular insight into how their lives are effected by their various suffering, and how their hearts are both uplifted & downtrodden in turn.

Pain insists upon being attended to.
God whispers to us in our pleasures,
speaks in our conscience,
but shouts in our pains:
it is His megaphone to rouse a deaf world.
~C.S. Lewis~

Please participate in this conversation, by considering these links and books, by sharing this with people you know who would be challenged or blessed by these things, by commenting here with questions or experiences or additional resources, and by praying for the Lord to work even in your own family to see where suffering is around you—in yourself, in your home, in your neighborhood, in your local church body—and ask Him to grant you whatever particular grace He needs to speak into your heart.

Do you need to humble yourself to receive more assistance? Do you need to embolden yourself to ask for more assistance? Do you need to lower your expectations for what kind of help you need, wisely discerning between needs and desires? Do you need to heighten the demands you put on yourself for seeing where your hands can labor, your prayers can bless, and your gifts can be showered? Ask the Lord to open your eyes and soften your heart in whatever direction would most glorify Him—and ask Him, then, for the strength and fortitude to follow Him with joy!

…We laughed, even me,
sincerely and happily,
but yet, I still ached in my soul.
~Ben Palpant, A Small Cup of Light, p97~

Soon I will share responses from the hearts of these women themselves. We will look at some Scriptures and meditate thereon. And then we will also hear, Lord willing, from a couple various church leaders for the perspective that comes on the side of sacrificial service and rallying the body of Christ toward love and good works. But today, let’s look at these links and browse these books—see what you can glean here, whether you are bed-ridden with illness or homebound with suffering, or whether you are strong & equipped to be serving hands filled with grace to those who are, or even whether your own current station in life doesn’t necessarily allow you (honestly) to lend time or finance to the suffering around you but at least to offer prayers and encouragement through words…

My prayer today is that the Lord would prick us by His Spirit, put our roots down amongst our family & church family, grow vibrant blossoms on our vines, and drop our fruit with abandon upon everyone around us. Amen.

One of Jesus’ early and great followers,
the apostle Paul, wrote once that
it is not what we have achieved
but what we are striving for that counts.
~Jerry Sittser, A Grace Disguised, p91~

LINKS FOR THE SUFFERING & THOSE SERVING THE SUFFERING:

http://chroniccurve.tumblr.com/post/14003538415/a-chronic-christmas-gift-ideas-for-the

http://www.accessbiblestudies.com/bible-studies/the-christian-and-chronic-illness/

http://justbetweenus.org/pages/page.asp?page_id=79768

http://sickofmg.blogspot.com/2011/02/dilemma-of-church-and-chronic-illness.html

http://lacedwithgrace.com/church-chronically-ill/

http://restministries.com/category/church-resources/

http://www.faithwriters.com/article-details.php?id=44192

http://restministries.com/

http://www.focusonthefamily.com/lifechallenges/emotional-health/living-with-chronic-pain-and-illness/ministering-effectively-to-the-chronically-ill

http://enrichmentjournal.ag.org/200702/200702_108_ChronicIllness.cfm

http://invisibleillnessweek.com/2008/08/10/care-ministry/

http://thedailyprayerblog.blogspot.com/2010/09/prayer-and-chronic-illness.html

http://www.kubik.org/vcm/illness.htm

http://www.shalombewithyou.com/prayer/physical-healing/prayer-for-chronic-illness/

https://www.facebook.com/pages/Chronic-Illness-Encouragement-for-followers-of-Jesus-Christ/363753660142

http://www.focusonthefamily.com/lifechallenges/emotional-health/living-with-chronic-pain-and-illness/when-we-suffer-a-biblical-perspective-on-chronic-pain-and-illness

http://trustingjesuswithchronicpain.blogspot.com/

http://www.ucg.org/beyond-today/meaningful-hope-for-christians-with-chronic-illnesses

http://www.retropulser.com/

 

SUGGESTED BOOKS FOR VARIOUS TYPES OF (primarily longterm) SUFFERING:

A Cypress Will Grow by Amy Chai

A Place of Healing by Joni Eareckson Tada

A Reluctant Journey by Kristen Grathwol

A Small Cup of Light by Ben Palpant

Be Still, My Soul edited by Nancy Guthrie

Beyond Pain: Job, Jesus, and Joy by Maureen Pratt

Bound by Illness, Freed by Grace by Maureen Brady

Chronic Pain by Rob Prince

Chronic Resilience by Danea Horn

Coping With Chronic Illness by H. Norman Wright

Doing Well at Being Sick by Wendy Wallace

Empty by Cherie Hill

Fibromyalgia: God’s Grace for Chronic Pain Sufferers by Robert Smith

Healing Prayers by Lauren Wilder

Holding on to Hope by Nancy Guthrie

Just Show Up by Kara Tippetts

Living Well With Chronic Illness by Richard Cheu

Mended by Angie Smith

Ministering to those in Chronic Pain by Susan Gerberding

Miserable Joy by Jason Nelson

Mosaic Moments by Lisa Copen

Pain and Providence by Joni Eareckson Tada

Sick and Tired of Feeling Sick and Tired by Paul Donoghue and Mary Siegel

Spurgeon’s Sorrows by Zack Eswine

Struck Down but Not Destroyed by Douglas Wiegand

Suffering and the Sovereignty of God edited by John Piper

The Beauty of Pain by Judy Dillard

The Hardest Peace by Kara Tippetts

The Loveliness of Christ by Samuel Rutherford

The One Year Book of Hope by Nancy Guthrie

The Works of Ann Bradstreet by Ann Bradstreet

What if Your Blessings Came through Raindrops by Laura Story

When The Darkness Will Not Lift by John Piper

You Don’t Look Sick by Joy Selak and Steven Overman

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~part of our series, Serving Those in The Church with Chronic Needs~

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Rescue me, O God…

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When you stop trying to control your life
and instead allow your anxieties and problems to bring you to God in prayer,
you shift from worry to watching.
~Paul E. Miller, A Praying Life, p73~

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Though suffering itself is universal,
each experience of suffering is unique
because each person who goes through it is unique.
We must enter the darkness of loss alone,
but once there we will find others with whom we can share life together.
~Jerry Sittser, A Grace Disguised, p171~

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~part of our series, Serving Those in The Church with Chronic Needs~

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First: Introduction to Serving those with Chronic Needs in The Church

First: Introduction to Serving those with
Chronic Needs in The Church

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Part of every misery is, so to speak, the misery’s shadow or reflection:
the fact that you don’t merely suffer
but have to keep on thinking about the fact that you suffer.
I not only live each endless day in grief,
but live each day thinking about living each day in grief.
~C.S. Lewis, A Grief Observed, p9~

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P1200981

People often mention how Scripture shows us Jesus loved to be with the marginalized—He is humbly involved in the lives of those whom the mainstream Jewish people wouldn’t really touch (with their prayers, their time, their gifts, or their hands). Do you know what else I find interesting about these marginalized people? Many of them have needs that are chronic, rather than acute—people with paralyzed bodies, withered limbs, leprosy, epilepsy, blindness… we don’t often know how long the people Jesus healed had been suffering with their ailments, but certainly we can deduce that many of these needs would have been chronic and longterm. These people had surely been suffering for a long time.

Matthew 9:20 tells us of the woman who had been bleeding for twelve years before she touched the hem of Christ’s garment, and received healing.
Luke 13:11 tells us of a woman who had suffered severe infirmity for eighteen years before Jesus spoke to her and took her hands, giving her new strength and taking away her infirmity.
John 5:5-6 tells us of the man by Bethesda who had been infirm for thirty-eight years, and Scripture specifically says that Jesus knew the man had suffered in this way for a long time already.
John 9:1, 20 tells us of the man born blind, who was now an adult, and had spent his life unseeing until Jesus entered his life and opened his eyes.

Are we—Christ’s people—moved with compassion for those who are weary and scattered (Matthew 9:36)? Do we have the same humble love for the people in our own local church bodies who are marginalized due to chronic needs? Those who are crippled in body or in spirit? The men, women, and children all around us who suffer diseases or injuries or ailments? People who have visible suffering? What about invisible suffering?
Sometimes suffering is obvious (like someone in a wheelchair because of a disease or injury, or a longterm well-known illness like MS or ALS or cancer), and sometimes it is very hidden (mental illness—including depression—or physical illnesses that take invisible manifestations like fibromyalgia or CFS or autoimmune diseases).
Do we see these needs? And when we see them, how do we serve them? Who is responsible for taking care of which needs? How do we discern between needs and desires? How can we bless our brothers and sisters who suffer long and hard with chronic needs?

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When I am in the cellar of affliction,
I look for the Lord’s choicest wines.
~Samuel Rutherford~

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I have a heart for those who are suffering, and God has put it on my heart recently to pray and research and write for the sake of those with needs due to chronic illness, chronic pain, chronic suffering. I have been writing and conversing with a number of women lately who suffer various forms of chronic pain and chronic illness—seeking to uncover the ways in which they have been richly blessed, and also looking to see the ways in which they would be even more deeply blessed. I have also sought out some pastors on the subject, but unfortunately, they are so busy ministering to their own congregations (which I applaud them for!) that having the time to write out specific thoughts in this way may have been too much to ask—but I did hear briefly from a couple pastors that they acknowledge this area of need, and are thankful that we are going to have this conversation here, so that we can encourage one another on toward further love and good deeds, coming alongside our brethren and our neighbors to see their needs, cover them in our prayers, and seek wisdom on any practical ways our hands can bless.

I have been given my own forms of longterm suffering (both obvious and hidden), but I can only begin to scratch the surface of the depths of suffering that so many go through—so many people I even know personally—on a regular and ongoing basis.
Since this is a subject the Lord has put heavily on my heart lately, I want to honor Him and bless my friends in any way I can on the matter. I think this is an area where churches in general probably have room to grow. And I think both those who have the chronic suffering, and those who minister to them, could always use affirmation, encouragement, and a prodding to keep fighting the good fight.

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So, over the course of (probably approximately) a week, we are going to delve specifically into the subject of serving those in the body of Christ around us who have chronic needs. We will be asking some questions to get conversations going & make every single one of us think… we will be asking more than we will answer, for sure… we will be sharing quotes and Scriptures and prayers… and we will hear personally from a handful of people I know who suffer chronically so that we can see their varied perspectives through their own eyes.

As we do this, my prayer is that we would each be encouraged and exhorted by the words of Christ to His disciples, that “Freely [we] have received, freely give” (Matthew 10:8). Please join in the conversation, please join me in praying for a humble & receptive heart, please share this series with others you know who would be mutually blessed, encouraged, & exhorted by reading along or participating.

… … … … …

Suffering is God’s gift to make us aware of our contingent existence.
It creates an environment where we see the true nature of our existence—
dependent on the living God.

~Paul E. Miller, A Praying Life, p126~

… … … … …

~part of our series, Serving Those in The Church with Chronic Needs~

… … … … …

Chronic Needs Series Coming Soon…

Coming soon… up close & personal…

a little blog series on the subject of serving those in The Church who have chronic needs
{chronic pain} &or {chronic illness} of {any&all types}

Please stay tuned, please prepare to participate in the conversation, please let me know if you have experience…
if you are a blog lurker & would like to participate by being interviewed
either as a pastor/church leader or as someone with chronic suffering,
please please please let me know asap!

… … … … …

~part of our series, Serving Those in The Church with Chronic Needs~

… … … … …

Creating Memories, V

CREATING MEMORIES, V
looking forward & back

It’s Mother’s Day! And I am in the blessed scenario of both having a mother and being a mother. Do you know, when I was a young child, my grandma had the pretty unique blessing of both being a grandma and having a grandma?! Yes, we had five generations alive at one time—all the way until right before my ninth birthday, when my Great Great Grandma died, still sharp as a whip. A lot of my childhood memories hold a lot of old people—my great granddaddy James (who lived with us for a while, right before he died), my great great grandma Martha, my great grandpa Willard, my great grandma Van, and all four grandparents (two of whom lived with us for a while) for a good bit of my childhood. And oh, how I wish there were some way to harness more of those memories—there is just nothing like generational blessing, and I so desperately wish I could cling to those times with my older relatives with more detail in my memory. It is one thing that makes me long—on the other side of the coin—to give my children as many opportunities with their grandparents and great grandparents as possible. It’s one piece of why my heart breaks at the thought that my children may never see my grandfather again—and their great grandparents on their paternal side never really knew them—and even their paternal grandparents are so far away… Knitting generations together is a beautiful tapestry, and sometimes it is hard to weave (sometimes impossible, because heaven is a long way away…), but it is so worth every effort. Every memory I have of my parents, grandparents, great grandparents, and great great grandma are treasures. True treasures.

My days are swifter than a weaver’s shuttle…
Remember that my life is a breath…
Job 7:6-7

Peek around at our intro, part I, part II, part III, part IV, quotes and Scriptures and thoughts of grace.

And now as we finish up our conversation on creating memories, I am looking forward as well as looking backward. I am recalling some more little things from my own childhood. I am thinking of some more little things that I wonder if my children will remember when they are grown. And ultimately, I pray that my children will have the incredible blessing of knowing faithful generations on both sides of their own stories, and have treasure troves full of memories that these relationships weave through their lifetimes.

Remember how short my time is!
For what vanity You have created all the children of man!
Psalm 89:47

 

Looking Back

~I remember my childhood church, and filling a really long pew in the balcony every week with five generations. I remember the Sunday School building, and how Pastor Flood had a gumball machine filled with jellybeans where we could spend pennies for the goodies, and a couple of my friends didn’t like the black ones so I always got extra. I remember going to Thursday School in a far back building on the church campus, where we did neat projects and I felt like a big kid because one day I week I got to “go to school.” I remember the children’s choir—originally called the New Creature Choir, where I learned how to play recorder. I remember musicals, dying to play a lead part, and singing with all my heart. My family didn’t do Awanas, but sometimes I got to go with a friend—we didn’t regularly do VBS either, but I remember going with friends one summer and being totally overwhelmed by the puppet show. I remember weddings and funerals there. I remember the big grass field where we played games, and the area of trees that bees flocked to and stickinesss covered the ground—I’ve long wondered what kind of trees those were. I fell in love with Jesus there, I fell in love with singing there, I fell in love with piano there, I made some of the best friends a girl could ever ask for there. I have very fond memories of my childhood church.

~I remember my childhood home, where I lived & loved from 4 to 14. I don’t really remember the little house we lived in before that, except for little snippets that have been largely aided by photographs I have seen throughout my life. But I remember my bright pink bedroom in our big house on the hill. I remember loving the swimming pool in the middle of the hill and the creek at the very foot of the hill. I remember the horse corral, and wishing it were not a dilapidated fence just to play around but rather a real paddock where I could run my own real (rather than imaginary) horses. I remember the blackberry bushes and the poison oak. I remember the tall grasses. I remember my brother finding pinecones to harvest pinenuts from like an Indian. I remember learning to dive in our pool. I remember friends staying in the poolhouse, which was our guesthouse. I remember my mom sponge painting the two changing rooms on the side of the poolhouse. I remember having a hot tub that never got used, until it was removed one year so my dad & brother could build a crazy computer room in its place. I remember where the little old television was set up downstairs, and the ceiling-high set of shelves covered in VHS tapes. I remember my brother sat in the oversized chair on the left, and I would sit with my dog Goldie on the grungy couch on the right. I remember having friends over to “play prairie” with me in the backyard (especially after my dad and brother built me my prairie house with the triple bunks, the window with shutters, and the fold-down table), and then we would eat mac & cheese and drink Diet Coke for special lunch treats.

I looked on child rearing not only as a work of love & duty
but as a profession that was fully as interesting & challenging
as any honorable profession in the world
and one that demanded the best that I could bring to it.
~Rose Kennedy~

~I remember going to classes. I remember ballet—I remember loving Miss Tammy to pieces, and wanting to be a ballerina forever. Later I remember another teacher, Mrs. H, poking my tummy and telling me I was getting pudgy—and how that has plagued me for over twenty years now. I remember going to art class, and adopting my teacher, Miss Carmel, as another grandma. I remember doing a writing class. I remember a group of us homeschooled kids getting together to put on a production of Anne of Green Gables. I remember literature classes, logic classes, a class on the Civil War. I remember piano lessons—I had three teachers in California, one teacher in Washington.

~I remember falling in love with writing. I remember creating my Little Women’s Society magazine, and meeting hundreds of young ladies across the country (and a couple internationally as well) through my publication. I remember spending hours writing, compiling, typing, formatting, honing computer skills, printing & collating & stapling & addressing publications month after month (every other month for a long time, eventually quarterly, and then by the time I was in college, I had to give it up altogether). I remember sharing my life on paper with friends and strangers alike.

~I remember having fifty penpals at one time, and I regularly corresponded by hand with each one. I loved these long distance friends keenly. A few, I got to meet in person when traveling, and some I actually moved to live near. I still know many of them. And there are a couple (Joanna in the midwest and Samantha in sunny Cal!!) who I still communicate with long-distance but have never (yet) met in person.

~I remember Sunday evenings at Grandma and Grandpa’s house. Five generations, usually at least a dozen people in attendance, gathered in my grandma’s house every Sunday evening. I remember Grandma and Mama cooking, Aunt Wendy washing dishes. I remember watching America’s Funniest Home Videos after it was all cleaned up. I remember helping my little cousins take baths, playing Duplos together, teaching a cousin to play Go Fish.

You were and are mother to my father—
the tree from which apples fell and grew
from which apples fell and grew
from which apples now fall and grow.
You are gone from this orchard, but [we] […] will grow on,
pointing toward the Son you showed us.
We will live—and we will die—in Christ,
thankful that He placed us downstream in the river of your human grace.

~N.D. Wilson, Death by Living, p169~

~I remember my parents dressing up to go the Civic Light Opera, dropping us off at Grandma and Grandpa’s house for dinner and sometimes a sleepover. I remember trying to spin in the leather-plastic chairs at the dining room table with my brother (they must have been from the 70s but they were spinny and fantastic fun when nobody was looking!), but getting Grandpa’s stern eyes—the same eyes we’d get if we put our elbows on the table or got too wild. I remember Grandma’s frog cookie jar. I remember spending nights at my grandparents’ house sometimes—I would sleep on the floor next to my grandma, and my brother would sleep in their walk-in closet. I remember an entire shelf of cereals in their cupboard, and how my grandparents would mix different cereals and then pile a mountain of various fruit on the very top before drizzling a little milk over it all. I remember Great Grandpa’s woodpile and workshop. I remember how he built me a Victorian dollhouse by hand after he cut off all the fingers on his right hand with an electric saw (when he was about 90). I remember Great Great Grandma’s stiff chair with the doily on the top. I remember my noisy uncles always causing one raucous or another. I remember Grandpa and his avid gardening, especially the tomatoes and the roses. I remember making chocolate chip cookies with Grandma, and playing board game after board game after board game. I remember her trying to convince me that math was fun because it was just like a game, and the right answers were always “the win.”

~I remember going square dancing with my grandparents, their weekly date night out. I remember hearing about how my parents met at ten years old at a square dance in my other grandparents’ basement across the country. (I regret that I have never learned to square dance, and I hope better for my kids somehow.)

~I remember the parties my mom threw—St. Patty’s, July 4th, swimming parties, tea parties, Thanksgiving extravaganzas, Christmas parties of all sorts—kid parties where we made things with painted macaroni, or elegant evening parties with candlelight and classical music. I remember the food and the decorations. I remember how she worked hard but how she lived it up. She may not have had sparkly high heels on, but she wore aprons with pearls.

Oh, Marilla, I thought I was happy before.
Now I know that I just dreamed a pleasant dream of happiness.
This is the reality.
~L.M. Montgomery, Anne’s House of Dreams~

~I remember trips. I remember spending Halloween weekends at Disneyland because all the costumes were fun princesses and silly characters. I remember going away for three weeks at a time with my parents and my brother on road trips around various corners of the United States, with our maroon minivan packed full and our grey plywood car top carrier full of suitcases. I remember little tiny bits about going to Michigan when I was five, with both sets of my grandparents. I remember my granddad buying me a purple bike at a garage sale so that I could ride around Mackinac Island with everyone else. I remember my grandmother’s basement—the way it smelled, the cement floor and the fun toys, and imagining the square dances they used to host there. I remember the hot air balloon festival in New Mexico, and buying my own pair of moccasins near the Grand Canyon in Arizona. I remember staying in Las Vegas, all the bright lights and the fancy hotels, and my parents having fun with nickel slots one night. I remember traveling back east with our best friends, going through all the Colonial hot spots we had studied together in history, seeing it all face to face and reenacted. I remember driving around in a rented motorhome one time, falling in love with people and places, lying on the bed in the back with my dad while we drew pictures of future dreams while Mama drove us around and Colin manned the maps.

~I remember uprooting and starting over with my family, moving from city to country. I remember watching my dad put pieces back together. I remember him starting churches. I remember God’s hand at work in my parents. I remember testing their faith. I remember old dreams and new dreams. I remember my dog dying in my arms. I remember knowing what joy was. I remember learning what grief was.

You make the best choices you can at the time with the information you have,
and then you deal with the consequences,
and that’s the part where your life happens.
Every major decision we’ve made involved prayer and advice from wise people,
but that was no guarantee that it would turn out the way I wanted,
with a little white house and a picket fence.
~Myquillyn Smith, The Nesting Place, p39~

~I remember so many little snippets, just little sprinkles on the icing on the cake… and I don’t want to forget. But I do, and I will. So I want to enjoy the memories while I have them.

 

Looking Forward

~I wonder if my children will remember how hard we worked to grow our family, how we prayed and cried and kept trying again. I wonder if they will remember standing in the bathroom with me while I put shots in my tummy and they take turns counting to ten for me while I inject. I wonder if they will remember life before and without one another, if Gabriel will remember his years as an only child when he cried & begged & prayed fervently for a little brother or sister.

~I wonder if my children will remember the schooling we give them—if the books, facts, lessons, tests, fieldtrips, and experiences will sink in deeply and take root. I wonder if they will have loved their educations as much as I did mine.

~I wonder what my children will remember about their grandparents and their great grandparents. I wonder whether it is the big memories like the family vacations or the big holidays they will remember most, or the daily ins and outs of living life together that will be the monuments in their minds.

The childhood shows the man
As morning shows the day.
~John Milton, Paradise Regained~

~I wonder if they will remember me asking their forgiveness when I have lost my temper or otherwise sinned against them. I wonder if they will remember me saying yes more often than no. I wonder if they will look back on their childhoods with delight instead of regret.

~I wonder what trips will stick strongest in their memories, and which birthday celebrations or holiday traditions will maintain monuments in their minds. What will be the traditions that our kids, once grown, will want to cling to and come back home for? Will any of our kids remember their lives here in the country so fondly that they too want to build on the family land? Will I have grandchildren who know me, love me, remember me?

Do not spoil what you have by desiring what you have not;
remember that what you now have was once among the things you only hoped for.
~Epicurus~

~I want my children too to remember little snippets that will be the sprinkles on the icing on the cake. I want them to enjoy the memories they keep, and I want us all to enjoy making the memories in the meanwhile—by God’s grace and for His Kingdom.

Creating Memories, IV

As we approach the end of our conversation on creating memories for our children, (see the intro, part I, part II, and part III, as well as quotes and Scriptures on the matter) I will share some specific ways that we pursue particular routines & events to create memories for our children which we hope & pray will solidify the family culture we seek to create in our home & family.

CREATING MEMORIES, IV
how we pursue creating specific memories through
routines & events to solidify that family culture

~bedtime serenades~
Last summer during some power outages (two weeks’ worth, ten days apart from one another), I picked up piano playing again. My pretty little baby grand had been gathering country dust (which honestly is unavoidable where we live) but had also been largely unplayed and unloved in recent years. During those weeks with no cd player, no internet, no videos, no electronic anything… I returned to making music. I pulled out Beethoven, Debussy, Bach, Mozart, Rachmaninoff… along with some collections of other random composers both historical & contemporary… and I simply began to play. But it is hard to play during the day when other things call me… like children… or chores of all various & sundry types. Especially once the electricity returned, and I could cook and clean and launder and internet (can I please use that as a verb? thankyouverymuch) normally again, I found that finding uninterrupted time for music making is really quite difficult.
But the children begged me to play for them, and my husband is more than delighted when I play as well. I do desperately want my children to remember their mother as partly musician, and definitely as a true lover of music.
So it happened: bedtime serenades were born.
Now, after tucking them in, kissing them, praying for them, and blessing them, I scoot myself over to the piano. I play for roughly thirty minutes, and the children love falling asleep in the midst of it. I guess it’s been a habit for over nine months now, and it is definitely rooted in the evening routine at this point.
Recently, they have begun requesting harp in addition to piano. Sometimes I play one instrument per night, other times I play a little of each. There have also been occasions recently where I simply am too exhausted to play at all, and I beg their forgiveness even as their little pouty lips show me their true disappointment.
So I do my best to keep up with the tradition, and all three of my kids nightly remind me of my musical commitment to serenade them in their beds. It’s funny how such a joy for all five of us has become a habit, part of our evening routine, and now something I hope we will all remember in years to come as something which filled our home with joy, beauty, and melody while the crickets sang and the stars twinkled outside and little ones’ bodies fell into slumber in the comfort of their own little beds.

We don’t risk because it’s easy;
we risk because of hope,
because we see the promise of something better.
~Myquillyn Smith, The Nesting Place, p85~

 

~joy at the table~
We need to keep working on this one, I’ll just say honestly from the get-go. 🙂 I long for my children to look back at mealtimes not just as opportunities to fill our mouths and bellies with food, but to love one another and spend time with one another… especially the dinner table where all of us sit down together. Breakfast and lunch, at this point in our family’s life, are meals the three kids share together, but Steven is at work and I am bustling around doing multiple other things. So evening dinnertime is our daily hallmark to sit together, speak together, laugh together, and spend time in one place together. The dinner table is not a time and place to focus on ourselves or to suddenly become introverted and quiet while we stuff forkfuls of chicken and rice in our mouths. This is a time to feast together not only on food, but on one another. As the kids grow, I know our conversations will also grow… at this point, it can obviously still be pretty tricky to carry on much of a real conversation. But conversation, even if in fits and spurts, is better than all quietly munching on our food side by side. I try to pass questions off to each of the kids (preferably not when they have just filled their mouths with a big bite… but my timing is not always stellar…), and encourage them to tell their daddy about their day. We also try to teach the kids to ask questions of others, too, and encourage conversations that way. Sometimes jokes and giggles and silly sounds make their way into the dinner routine, and I can’t help but throw my hands up in laughter and let it go. Manners are definitely a work in progress, but joy is a more important work at this point, and we are eager to continue growing in this daily time together at the table, and hope that as our children look back on their life in our home, that it will be a blessing they count in their memories, and a place they long to return to for more feasting on all the best kinds of fat things together.

Get advice from people who are doing the thing
the way you want to be doing that thing.
It’s a universal law that can be applied to almost any situation.
~Myquillyn Smith, The Nesting Place, p92~

~Sabbath as a joy & monument, Christ everyday & in our everyday~
Have you ever read Laura Ingalls Wilder’s “Farmer Boy” and been taken aback at the description of Sundays? As I recall, it’s the same in “Little House in the Big Woods,” and I don’t think the legalism and harsh realities of what “Sabbath” meant to people is really very far-fetched for most of us. But my boys, who are old enough to pick up on the nuances of these details we read about, find it absolutely unimaginable. They love Sundays! They happen to love dressing up, so wearing their Sunday best is anything but a chore (and I think that took some training, both habitually and watching their father learn to enjoy dressing up as well ~ because of course the boys really just want to be like their daddy!). They get leftover pancakes or waffles (because Steven has a tradition of making breakfast on Saturdays, and he always makes leftovers so the kids can have sweet goodness on Sunday morning that won’t take me a lot of time or work to prepare), and I often give the kids each a special treat like a piece of candy and say, “whose day is this?” The Lord’s Day! “and what do we do?” Be Glad In It! “and remember that it is sweet!” Then we head off for an hour of Sunday school before going to worship together. Our children learn from infancy about liturgy and participating in worship: they recite creeds and other liturgical phrases, they sing (at the top of their lungs when they know the words!), they kneel & pray, they pass the peace of Christ with the brethren around them, they partake of communion (and teach us adults so much through their attitudes of peace and abandoned delight as they kneel at the altar). We fellowship with other believers: whether in the church building or in homes, we love another with hugs and handshakes, over plates of food and cups of coffee, we seek the good of others, we ask questions and answer questions, we converse and seek to delve ever further into sharing life with these people who are our brethren. We encourage our kids even as little people that spurring one another on to love and good deeds is what church life really boils down to, and glorifying God through our fellowship, worship, learning, growing, sharpening, and sharing the Good News. We encourage multi-generational worship & fellowship, delighting in filling a pew with three generations as well as often going out to eat with my parents after church (which is monumentally exciting for the kids week after week!) if we don’t have people over or have not been invited elsewhere. We love to pray in public, and the kids frequently ask to do it. They never mince words or turn down the volume, and it’s winsome. If we aren’t spending the afternoon with other folks, we generally head home to read and play and rest and sometimes nap. We love reading by the fire in wintertime, sprawling on the grass in the summertime.
Then there is our Sunday evening family fun night, detailed under the next heading.
And after the kids go to bed on Sunday nights, it’s time for my husband and me to have our own little restful date night, usually with wine, cheese, olives, & chocolate.
We seek to grow continually in our Lord’s Day practices, and to engage the children in the process, so that our Sabbaths are simply joy-filled days of resting in the Lord & delighting in His world. We long for a truly robust habit of Sundays, which joy oozes out into the other six days we spend cultivating the world God made and loving the people He created for it.

So we don’t draw the line there, leaving our pursuit of Christ and His holiness on Sundays, of course. We pursue God’s Kingdom every day of the week, and seek by our words and our actions to lead our children in this way. We pray out loud numerous times throughout the day (we take turns doing it—the children love to lead in prayer, to speak to their Father in specifics), we read Scripture (I have Scriptures around the house in various art forms or presentations, and I try to read with the kids going straight through books of the Bible in conjunction with learning catechism together—we’re finishing Genesis right now before jumping to one of Paul’s epistles again), we praise God for both big and little things (like finding a baby’s heartbeat on the doppler! or finding a parking spot right next to the shopping cart return…), we talk of the fruits of the Spirit and sing of God’s grace and faithfulness. We discipline and disciple as diligently as we can, and grace with forgiveness are emphasized again and again throughout the days. We use catechisms and Scriptures the kids know to “hold them by their baptism” as one of our pastors would say. There is never a moment where they are not bound up in Christ, filled with His Spirit, and heard by the Father—so there is never a moment where we should not seek to act like His children, in thought, word, and deed. That is our endeavor, our pursuit, our hope, our prayer, our privilege, our delight.

 

~weekly family fun night~
As I said above, part of our merrymaking on the Lord’s Day is how we wrap up the day with family fun night: the intent being to do something fun and to eat something fun. At this season of our little family’s life, that means watching movies in Mommy & Daddy’s room while eating popcorn and ice cream. Someday, we look forward to developing it further with board games and blended drinks, for instance! We hope this weekly tradition (which the children adore) will grow and deepen as our kids do, and that its fun will continue to reflect our family relationships and the joys we find in one another.

Living is the same thing as dying.
Living well is the same thing as dying for others.
~N.D. Wilson, Death by Living, p84~

~love of learning, delight in playing, embracing of all we call neighbor~
Especially as a homeschooling family, but regardless of it just the same, we seek to daily inculcate a love of curiosity and creativity and learning. We emphasize that education is all around us, and that we should enjoy reading, uncovering, discovering, and continually attaining knew heights in our education all the time, every day ~ all of us, not just those who qualify as K-12. We love books, and try to give countless opportunities for reading fiction and non-fiction and Scripture and schoolbooks throughout the days. Trips to the library require muscles these days, as we bring home dozens of books filling a large basket, and we often renew them as many times as we can in order to best glean from them and love them. Our oldest son now often begs to go to bed right after dinner, just so he can read by flashlight for hours in the evening!
We encourage a delight in playing, especially playing together. Our kids do love toys (don’t all kids?), but they love their imaginations more. When the playing is no longer fun, the salt has lost its savor… so we encourage them to move on to new fun and different playing. They learn, they grow, they rejoice, they love life when they play together delightedly, so we try to have plenty of time each day where they can nurture their imaginations and play together with joy.
We also seek to embrace our neighbor in these things, especially as learning and playing coincide. When bringing cookies or Christmas poinsettias or loaves of fresh bread to literal neighbors, we remind our kids that we love in action in addition to our words. When we meet new families on fieldtrips or at the library, we remind our kids that these people too are our neighbors. In our church home, we teach our kids to embrace all of these people with all of these stories in all of these generations because they too are our neighbors. We try to help our kids come up with creative (or not) ways to embrace people: with handwritten or hand colored notes, with gifts of homemade foods, with various forms of opening our home & sharing hospitality, with smiles or handshakes, with grace and forgiveness.

If you were suddenly given more than you could count,
and you couldn’t keep any of it for yourself,
what would you do?
That is, after all, our current situation.
Grabbing will always fail.
Giving will always succeed.
Bestow.
Our children, our friends, and our neighbors will all be better off
if we work to accumulate for their sakes.
If God has given you a widow’s mite, let it go.
Set it on the altar.
If God has given you a great banquet than you can possibly eat, let it go.
Set it on the altar.
~N.D. Wilson, Death by Living, p110~