Pregnant with a Rainbow, Part VI

After previously giving you a small glimpse into the nuance of pregnancy-after-loss that is anxiety, I wanted to share with you a longer snippet: the account I wrote of my first ultrasound with Sweet Teen, many months ago now. But still fresh in my mind. This is a way to share with you some of the very real anxieties mixed with joys. To give you a more long-winded version of one short experience, in a long series of appointments, milestones, and months of pregnancy.

This happened when our baby boy was only seven weeks old. I’ve held babies that age in the palm of my hand before.
And I call this, First Look:

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FIRST LOOK

Mommy, where are you going? I heard you say Grandmama was coming over today. Why? My little-big boy asks. I breathe deep, and kind of chuckle to myself seeing my husband leave the room—I wonder if he is standing in the next room listening in, or if he is avoiding hearing the conversation, or if he even heard the question in the first place. To me, all of a sudden my ears are ringing and my palms are getting a little sweaty. Another sigh, and I step close to my son. I kiss him on the head and I smile at him. Do you remember the special camera that gets put on Mommy’s tummy when there is a baby inside? The one that lets us see into the secret places where God does some of His most amazing work? And we get to take little peeks at our babies? My son’s eyes get big and he says, I love that machine Mommy! I love getting to see our babies! Do you get to go see our baby today? I smile at him, Yes honey, we get to see our baby. But remember—this is the first time seeing this baby, so we technically don’t know what is going on inside Mommy. Remember how sometimes, in the past, I have come home from appointments to tell you that God said yes, and other times God has said no? Well, we don’t know what God is doing, so we just get to keep praying for life and hoping for big miracles. He smiles at me, hugs my tummy tight, reassures me that he will be praying all day, and reminds me that God is good when He says yes and He is also good when He says no.

The faith of a child. I understand Jesus calling us to become like children in our faith.
My son preaches to me with his words and his eyes.

My frame was not hidden from You,
when I was being made in secret,
intricately woven in the depths of the earth.
Your eyes saw my unformed substance;
in Your book were written, every one of them,
the days that were formed for me,
when as yet there was none of them.
Psalm 139:15-16

Hours drag. Nerves bubble up.
I drink a big bottle of Perrier—I am supposed to drink over thirty ounces of water anyway, so it might as well be the good fizzy stuff that settles my topsy-turvy tummy.

My mother arrives just as I have braided my hair, put on a cozy sweater, and put on makeup. I avoid mascara, but take a leap of faith and go ahead with eyeshadow and eyeliner anyway. If I end up bawling my eyes out, it won’t be too bad that way, but at least I feel prettier with some sparkle above my nervous eyes—and if I am going to be a nervous wreck, I might as well be a pretty one.

I kiss my three little children goodbye. I remind my oldest that he can be praying, and that I am proud of him for being such a brave boy, such a faithful big brother. I promise to call him, even though my mother says she doesn’t want me to call. Before I walk out the door, my boy kisses me—then he draws a cross on my forehead with his right thumb, a faithful seriousness across his face and an empathetic glint in his eye. I know that deep in his soul, he is praying for me—and praying for his littlest sibling’s life. I feel the blessing of God as his thumb traces the cross above my brow and remember Who is bearing my burdens for me—even right now, even in this moment, even as I take the next step in a terrifying and unpredictable journey.

The drive feels long. It’s nearly thirty miles to begin with, but it feels longer. We don’t talk much, my husband and I—our nerves are edgy and prickly, neither of us quite wanting to voice our deepest fears. I feel like I am driving to the guillotine. The other shoe is about to drop. I don’t want to let go of these hopes and joys and dreams that have been building up in me. But the veracity of reality is about to look me in the face… and my skin gets covered in goosebumps because ignorance can be bliss, and knowledge fearsome.

My husband parks the car in the familiar parking lot. The hospital. The place where I have faced both life and death repeatedly. It’s a wonderful place—a horrific place. We pray. It is a simple prayer that my husband speaks, honest and vulnerable—not doubting or hopeful—simply requesting our Father to be with us, and begging His mercy upon the life we have not yet looked at with our eyes but know His eyes are always there.

Getting out of the car and walking into the hospital is painful—partly because of memories that are dancing in my head and partly because my bladder is close to exploding. The irony of asking pregnant women to overload their bladders with thirty-two ounces of water in the hour prior to an ultrasound is almost insane. I wiggle slightly back and forth while I check in, and I ask the receptionist, I’m not supposed to use the bathroom, right? She smiles knowingly and shakes her head. Okay, I say with a sigh and a forced grin, just thought it was worth asking. I guess it might be my way of communicating to her that I was more than ready for my appointment, and would appreciate being seen in a timely manner.

We sit down in the waiting area. A couple other people are waiting, too, reading magazines, looking at their feet. Elevator music fills the area. I squirm and rock side to side in my chair, willing my bladder to stop throbbing. A mere three minutes later, I hear a young woman speak my name. I look up—she is almost angelic—the sonography intern, telling me they are ready, and will take me back early so that I can go potty as soon as possible. Oh! I want to hug her. Waiting another twenty minutes until my actual appointment time would have been miserable on so many fronts—just having those minutes of bladder pain and painful memories avoided is such a gift, such a grace, such an act of mercy.

She takes us to the same room we were in for our last ultrasound—eleven months ago—with a baby who did not wiggle, whose heart did not flutter—a room where my husband’s head sank into his hands near his chest, and I laid on the paper covered table feeling like the weight of thirty-five rainclouds suddenly laid upon my chest and I tried my uttermost to hold back the storms of tears.
Oh God, I silently close my eyelids for a moment and pray, redemption. Oh God, please! Redeem this room, I beg You!

Unbuttoning my jeans, I lay my head back. Since an intern is performing the scan, she gets started right away while her supervisor asks me all the preliminary questions from a nearby computer desk. Keep breathing. Keep answering questions. Don’t look at the screen. When was my last period? How many times have I been pregnant? How many live births? Do I have a history of miscarriage? Yes, clearly, I say with a small snark under my breath. At almost this exact moment, Steven squeezes my hand—I see the heartbeat! My head jerks to the left and cranes upward to see the screen he is scrutinizing. What?! I almost shriek, unbelieving. The sonography intern verbally agrees with him, and for a brief second I see that miraculous flutter. But now my eyes are full of tears and I can’t see anything.

Steven’s smile is ear to ear. He keeps squeezing my hand. I think he just kissed it. I realize the intern is moving on to scan my ovaries and other lady parts but promises to come back to show us more of our baby in a minute. I also realize the supervisor has continued asking me questions but I am not paying attention. Medications? Oh, umm, yes I definitely take medications. I can tell you what they all are if you want—she types quickly and logs my pills and my injections—she looks over at me and smiles with this understanding, compassionate smile—she gets that this is a big deal, a big moment, a big day, a big lifetime.

I focus on breathing. I keep reminding myself that things are okay, don’t burst into tears. Things get more quiet when the questions stop, except for the click, click, click of the ultrasound machine and the intern taking various measurements of things. My brain starts going backwards in time, and I remember other babies, other ultrasounds. I start getting scared again and whisper to Steven, I don’t want this one to be like Heritage—I’m afraid this will be like Heritage. She outgrew her sac, and I am so scared that such a thing might happen again. Steven keeps grinning at me and squeezing my hand though—not only more calm of spirit in general, but also having a much clearer and more direct view of the computer screen—he seems unfaltering, unwavering, solid. I cling to that. I repeat Psalm 46 to myself and sing a version of Joshua 1:9 under my breath that my dad taught me just this week.

Behold, I have said unto thee
Be strong and bold,
Neither fear nor dread.
For the Lord thy God is with thee,
whether so ever thou goest.
Joshua 1:9
(William Tyndale translation, 1549)

Finally, we get to focus on seeing our baby. I am so thankful the sonographers call it our baby! No cold medical terms here, but warm familial words. They comfort us with their encouraging tones and phrases that reassure us things look okay. The sacs measure the right size, and we can easily see that precious little heart fluttering away! My bladder is so full that half the computer screen seems to be filled with a big black bubble—it’s even squishing the baby’s gestational sac to the point that it makes it hard to measure the baby’s size! They squish and squash things around, but finally realize that the only thing that will allow us to properly see our little baby is to let my bladder shrink a bit. Go to the bathroom, and try to go only partway, they say. I make a joke about needing to practice my Kegels anyway. I eagerly find the bathroom and do my best. While I wash my hands, I look at myself in the mirror—I can even tell that I look weary and petrified, almost old. I purse my lips, pinch my cheeks, tell myself to brighten up because the sun sure is shining today.

I return to the room and lie down again. The paper on the table is crunchy, and I giggle to myself thinking about how my kids would love to color on that stuff. They return to scanning my belly but quickly stop, laughing that I need to go back to the bathroom and try again—this time, she says, pee for a solid ten seconds before stopping, okay? Chuckling, I run back to the bathroom and decide to go for a full eleven. Why not.

It is such an indescribable relief to be chuckling in the middle of an ultrasound appointment!! Levity is not lost on me even at this moment when the world feels so heavy on my shoulders.

Back on the table again, with the warm gel squirted on my belly again, this time with the senior sonographer doing the work—there’s my baby. Oh bliss. No longer hidden and squished by my overfilled bladder, I can see those details I had basically convinced myself that I would never again see. Not quite big enough to look like a gummy bear with arms and legs moving around independently, but we are schooled enough in the world of first trimester ultrasounds that we can determine the crown to rump area, we can see the yolk sac, we can even see the umbilical cord connecting up to the placenta in my uterus. Measuring someone so small is no wee feat, but repeated measurements show that this tiny person is measuring exactly, precisely where it ought to, right down to the day. I have been everything but textbook with pregnancy in the past, so to walk the line of expected or average is a foreign thing to me, in any capacity.

Look at that heartbeat! It is the most miraculous movement in the world to my eyes. Flutter, flutter, flutter. Consistent and strong. Perfect. I am humbled. I breathe a deep sigh.

For You formed my inward parts;
You knitted me together in my mother’s womb.
I praise You, for I am fearfully and wonderfully made.
Wonderful are Your works;
my soul knows it very well.
Psalm 139:13-14

Pictures print off the ultrasound machine printer, and we are given black and white and grey blobs that are evidence of what the Lord is doing in secret, proof of life, confirmation of this crazy roller coaster we have been riding in recent weeks. I wipe the jelly off of my skin, button my jeans, say thank you repeatedly and emphatically—and thrust my things into Steven’s arms so I can hit the bathroom one last time for the full and final relief that only an empty bladder paired with a calm heart can give.

We walk out through the waiting room—holding hands & gripping ultrasound pictures with grins on our faces—like so many others who have innocently made that walk, climbed these steps, left this building. It feels unbelievably surreal to leave with hope renewed and joy strengthened—now that it’s over, I am willing to admit it—I expected to see death in my womb rather than life. To be surprised with the gift of life and hope leaves me speechless, but I have a dozen people waiting on pins and needs to hear the news.

As usual, I call my father first—I can hear the nerves in his voice, and I tell him quickly and plainly, everything looks good—and He praises God, he asks for details about his youngest grandchild, and he tells me repeatedly of his love for me.
Then I call my children. My mother answers the phone and I ask for my oldest son. Hi Mommy, we’re playing checkers! How’s the baby? Heart of my heart, I am so glad to hear your voice and so desperately thankful that I get to tell you that this time God said yes! Well sweetie, I have a picture here to bring you of our healthy little baby, who looks really good and everything is okay—and we get to thank God for this kindness! He says something about being glad and how he can’t wait to see me but he has to get back to his game of checkers.
I speak to my younger son—Hi Mommy, I miss you! Are you coming home? I smile to myself, not even actually sure which of my younger children it is for a moment—yes, sweetie, we will be home soon. And the baby is alive and healthy, so I will bring you a picture, okay?
I ask to talk to my mother, the one who didn’t want to be called. I figure they told me hormone numbers and lab results when I had specifically told them I didn’t want to know so it’s payback time—and I speak to her, telling her that her seventeenth grandchild is alive, healthy, perfect. I hear the relief in her voice, she almost doesn’t know what to say. Perhaps she is as surprised as I am that we have good news today.

That’s enough phone calls for now. There will be more phone calls and emails to compose later. For right now, though, I just want to be driven around by my husband, hold his hand, smile at one another surreptitiously, stare at these pictures of my little child—the one I will dream of and long for in ways that only I can—as I snuggle my Sweet Teen in my womb and head off for a celebratory lettuce-wrapped cheeseburger.

And so for this moment, suddenly and surprisingly, all feels right and beautiful with the world. 

How precious to me are Your thoughts, O God!
How vast is the sum of them!
If I would count them, they are more than the sand.
I awake, and I am still with You.
Psalm 139:17-18

~…~…~…~

Thank you for entering this part of my world with me. Thank you for letting me share my perspective, as I lend you my lenses to see the world as I see it through my own experiences and frame. God is good. And there is more yet to come.

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Pregnant with a Rainbow, Part III

As I look ahead toward the finish line of this pregnancy (cue the nesting season), I am also looking back.
One aspect I wanted to share with you about this specific PAL (Pregnancy After Loss) journey is how I shared the amazing & petrifying news with my family.
Here’s a peek into those sacred moments last winter, which I wrote about at the time:

~…~…~…~

I was waiting for just the right moment. I had a congratulations Daddy card and a hunting arrow stashed in an easily accessible place in case the moment presented itself. Dinner happened. House tidying happened. I turned on a video for our two younger children and began to fold laundry. They sat on the floor, propped on big decorative pillows, at the foot of our bed, watching the television with gleeful abandon. I had a mound of clean clothes and towels on top of our bed—I stood there making order from the chaos, folding piece by piece, sorting them into piles according to whom they belonged. I could hear my husband coming. I sneakily put the card and the arrow on his bedside table, and I stood on the opposite side of the bed to match socks and smooth shirts. He came in—he walked to his side of the bed to begin helping me fold the things which clothe our nakedness, warm our chill, and dry our damp. He stopped, seeing unusual items on his bedside table—he glanced at me quickly, then opened the card. His face! He saw the arrow, he read my words, and knowledge of our baby’s life seeped into his bones and changed his world in a nanosecond. He hurried to my side—kissed me, embraced me, touched my belly.

Such a real life family moment. The biggest boy at a sleepover for the very first time. Two year old sister and three year old brother, watching cartoons in the background, oblivious to the joy and the secrets and the conversation. Mound of laundry, half folded thus far, grounding us in reality. Our entire world taking a new shape while we stand here in the bedroom where we share this bed—the bed where thirteen children have been planted from seeds, in a love that only we know—and where there are memories of every child, the joys and the griefs, behind and beside us. Wedding photos—family photos—baby memorial photos—nine little wooden boxes where the bodies of babies rest. This is a sacred moment in our own sacred place. I did not plan it, but I waited for it. In this real life family moment, our family life is changing forever, one way or another. And all I can think of is how desperately I want this baby to live! And subsequently, how I never want to be pregnant again—how I want this moment to be the last time I share this sacred secret with the husband whose heart is knit into mine and whose body is my other home. I nuzzle my face into his shoulder, and I sigh—please Lord, save Lord, life Lord!

Telling our children has been a game-changer for me. Right from when I told Steven over a week ago about this little one in my womb, he was eager to tell our three munchkins, while I have been very reserved about the whole thing. Scorched into my memory as a burn whose scar will never completely heal is when I had to tell my oldest son that our baby girl had died. That was over a year ago. And then just a couple months later, I had to tell him again that God once again had said no. That was almost a year ago now. But the guttural, visceral pain I tangibly feel all over again when I relive the memory of telling my son that his beloved baby in his mother’s womb had died is indescribable, inconceivable, inexplicable. So telling our children about this new baby was not at the top of my to-do list.

My mother hen instinct is too strong—I want to cluck about, covering these precious chicks with my wings, distracting them with shiny bugs and grain on the ground, protecting them with every ounce of my being from the hawks that circle, no matter how far overhead. But my husband had a different perspective. He said, Our children pray frequently for us to have a baby—they deserve to know how the Lord answers when He hears their prayers. We should not try to protect them from what the Lord is doing here. These children are part of our family, and this baby is part of our family. The Lord put each of us together in this story for a reason, and the kids should know this chapter of the story too. We should give them the honor, the joy, and the privilege of rejoicing with us and continuing in prayer alongside us.

He got me there.

So I made a little notecard to give the kids, and right before we started our weekly tradition of a Sunday evening “family fun night,” we sat them down on the couch—the oldest, the only fluent reader, in the middle—and told them we had a gift to give them. With the three year old on one side and the two year old on the other, the 6 ½ year old read aloud the note that there was a baby in Mommy’s tummy, in answer to their prayers—and now we would get to pray together for God to care for this baby and to keep it healthy and safe. Two year old Evangeline remained pretty oblivious, slurping away on her sippy cup of cold milk—three year old Asher took a decidedly toddler response by scowling and repeatedly dropping his fist into the arm of the couch without actually saying anything—and biggest brother Gabriel’s eyes got big, his cheeks dimpled into a smile, and he said, “is it true? Is there really a baby in your tummy?” And less than a minute later, he wanted us to hold hands, bow heads, and pray for our Father in heaven to keep this baby alive, to let it live, to keep it healthy and safe.

And now I feel like anxiety is bubbling up around me in more noticeable, tangible ways than it has yet in this pregnancy. I feel naked, exposed, vulnerable. My children now know my secret. My son who can read me like a book and see through me like a piece of glass will interpret every attitude I have, every emotion I show, every comment or action—and he and I will now go through constant unspoken communication, where he will try to uncover every secret every day, and I will continue trying to hide his eyes and distract his gaze so that he will be as sheltered as I can keep him for right now.

Suddenly my weakness is plain and my strength is gone. My hope feels precarious and wavering. Even my praise and joy feel translucent, thin, wispy, fearful. There is no more hiding, no more pretending. I know what comes next: the children who pray at half a dozen intervals throughout the day for the baby in Mommy’s tummy, the kisses to my tummy, the spilling of the secret to everyone we see next.

Thus begins my time of needing to regularly preach the truth to myself. To cover myself with the armor that the Lord has prepared and given to me. To speak the truth to my family, to myself, to my God—regardless of what fears, feelings, anxieties, hopelessness tries to sneak in. I will bless the Lord with my words and my actions. I will do what He has called me to do, and I will follow Him in that wisdom. I will trust Him, even when that means giving up my entire set of spiritual and physical weakness to Him—because only He can give me the strength of soul and body that I need right now to accomplish the work He has set before me. So as I go to bed tonight, carrying a child within me that nobody can see or touch or help, I will recite His Word to myself and to Him, asking Him to renew my strength, to crown me with love and mercy, to satisfy me with His goodness.

~…~…~…~

Over seven months since I wrote that, I am still daily needing to preach the truth to myself, and asking the Lord to cover me with His armor. Just last week, I wrote a PAL prayer using Ephesians 6:10-20 as my skeleton. Looking back and looking forward are both good things, because they both remind me to throw myself on my King and trust Him for His mercy.

If you have lived through a loss, and have found yourself on the other side of that storm carrying a rainbow inside your womb, I would love to hear from you ~ what was it like for you to hear that news and to share that news?

The conversation will continue again soon…

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Pregnant with a Rainbow, Part II

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I have set My bow in the cloud, and it shall be a sign of the covenant between me and the earth. When I bring clouds over the earth and the bow is seen in the clouds, I will remember My covenant that is between Me and you and every living creature of all flesh. And the waters shall never again become a flood to destroy all flesh. When the bow is in the clouds, I will see it and remember the everlasting covenant between God and every living creature of all flesh that is on the earth.
Genesis 9:13-16

Last time I talked about how dressing my pregnant body walks a fine balancing line, and dances with a dichotomy. I know the pain, and I also know the joy. I embrace both.

Another way that I embrace both is another outward, visual thing. Not daily, but sometimes. You can see it in the picture above. Right over my heart is my necklace with all my babies’ names on it. Well, the first twelve. I haven’t added Sweet Teen’s nametag to it yet, because his name is still a secret. So he rests in my belly, and the names of the other twelve rest close to my heart.

Not that I ever forget… but sometimes I like having a tangible, visual reminder of all my children.
I like the conversation piece.
I appreciate the perspective.
And like our Lord’s seeing of His bow in the clouds, I like seeing this reminder & remembering.
And it’s something other people can see too, and maybe remember (or ask about for the first time).

The joy this little boy’s life gives me… this sweet baby who lives hidden underneath my skin… is indescribable. And the fact that I know what could have been makes me cherish him all the more, I think. I know how fragile life is. I know how undeserving I am. I know how miraculous it is that two cells met in my womb, that God spoke life into that union, that He gave us medications to control my body, that He enabled my physical self to nurture this tiny boy rather than attack it. I know. And that knowledge gives me a daily abundance of joy and dose of humility that I can not aptly put into words.

But if you look in my eyes, if you grasp my hand, if you see me fingering my necklace, if you notice me poking my belly because someone from the inside is poking me back… you might get a little glimpse of knowing too.

This necklace? Oh, it’s my mommy necklace.
Yes, each one of my children has a nametag.
Yep, there are a dozen.
Well… a dozen names there, and the thirteenth is on the way.
Yes, I am very blessed. You really have no idea.

Pregnant with a Rainbow, Part I

Recently, I have shared some thoughts about the grief of miscarriage, and I have also shared a couple little snippets about my current parenting & homeschooling endeavors with my living children. But what about the in-between? What about my current pregnancy with a rainbow? (“rainbow” being the term applied to a baby that follows a miscarriage or stillbirth)

I would love to share a few things about this season of my life, which is so varied and so full.

First… the outside.
This is from a month ago

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& this is from a week or so ago.
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On the outside, perhaps I look like any other pregnant woman.
When I am out & about with my three other children, perhaps I look like a whole host of other mamas.

In my heart, I feel somewhat unique, if not downright unusual.

There is a dichotomy that I face every day when I do something as simple as clothe my pregnant body. I walk a fine line between wanting to look pregnant and wanting to hide my belly. Everyone has a story, but not everyone knows the stories that belong to others. I know the pain that stairstep kids and pregnant bellies can cause to explode in the breast of a grieving, suffering, infertile woman. Thus, there is a part of me that wants to cover up the visual evidence of the child who grows and wiggles and hiccups and thrives beneath my skin. At the same time, I know more than a lot of people just how absolutely miraculous it is that there is a child growing, wiggling, hiccupping, and thriving inside of me!! I don’t take a day of this miracle for granted, and I want to embrace with faith and joy and hope every day that God gives me carrying this little baby inside (and, Lord willing, afterward in my arms). That includes not being ashamed of this gift. It also includes trying to clothe my ever-changing body with some semblance of skill, modesty, and beauty. Finding the balance between hiding and flaunting ~ this may be common to many pregnant women, but the nuances behind the need for this balance are fairly unique for those of us who have struggled to add a baby to our families.

When I see my reflection in a mirror or my shadow on the ground… any time my profile hits my eye… I am taken aback, and catch my breath. I never thought I would see my belly look this way again. The miraculous nature of this is not lost on me. It stuns me every day, it humbles my heart and covers my arms with goosebumps.

This is just the smallest glimpse into the “outside” of my pregnancy. I hope to give you little glimpses about the innerworkings, the things deeper inside my heart, and share a little bit about what it is like to be pregnant not only “with my fourth child” but “for the thirteenth time.”
I would love to let you peek into my windowpane, giving you a small view through the glass as I ride these last few weeks on the roller coaster of being pregnant with a rainbow.

And because you listen to these rules and keep and do them,
the Lord your God will keep with you the covenant
and the steadfast love that he swore to your fathers.
He will love you, bless you, and multiply you.
He will also bless the fruit of your womb
and the fruit of your ground, your grain and your wine and your oil
the increase of your herds and the young of your flock,
in the land that he swore to your fathers to give you.

Deuteronomy 7:12-13

Grief Has Become Part of Me

Living through grief takes courage.
Looking back at the darkest parts of grief takes courage.
Living life after grief takes courage.
Looking ahead to see that the darkness isn’t always so thick takes courage.

Isaiah 61:3
…to give them a beautiful headdress instead of ashes,
the oil of gladness instead of mourning,
    the garment of praise instead of a faint spirit;
that they may be called oaks of righteousness,
    the planting of the Lord, that He may be glorified.

I am amazed to look back over the last eight years since my first baby died and see how far God has brought me, even though that grief has been compounded eight times since then.

  • I smile and laugh. Daily.
  • I have children. Even some here on earth. Wow.
  • I can see others’ babies & stairstep children without feeling like my heart is going to implode. Sometimes I can even hold someone else’s baby. Even marker babies.
  • I often see those maker babies (who are turning into marker children) as joyful ~rather than painful~ reminders.
  • I can buy baby gifts or maybe even attend a baby shower without weeping.
  • I don’t have daily anxiety attacks that my husband or one of my living children is going to die.
  • I see all the reminders and memorial items in my home as comforts.
  • I speak of all of thirteen of my children, including my nine in heaven, with gladness and thanksgiving. There might be twinges of sadness and what-if, but there is no despair.
  • I can write about my grief, my miscarriages, my emotional or mental or spiritual struggles, with honest humility rather than humiliation.
  • I find immense joy in Christ my King, to whom I belong ~and to whom my children each belong~ and find ever growing trust in His sovereign goodness.
  • I have a marriage that has been tested by the fire of grief ~including our own version of infertility called uRPL~ which is stronger and deeper and richer than I knew it could be at only 8 years into our covenantal union.
  • I can give of myself ~including my heart, my tears, my experiences, my prayers~ and no longer have to be primarily on the receiving end of comfort or encouragement.

(for similar perspectives from a dear friend of mine on the “then” and “now” relating to miscarriage’s grief, see what she shared here & here)

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I can look ahead to the future with hope and joy… and that happens to include looking ahead to my eternity in heaven, where I trust the Lord will reunite me with the covenant children I continue to miss, right through my new normal and through my embracing of life as it is. I have hope. I have joy. Not only for eternity, but for now. Because of Christ. And His work in me.

Grief changes so slowly most of the time, that it can be hard to notice the changes.
And then maybe after a big chunk of time, suddenly you turn around and see it:
the darkness is not as thick, perhaps the darkness has even lifted.

Sometimes I have felt guilty for those moments when I realize the grief is not as thick.
As though I am not adequately marking the lives of the children who I have lost to heaven.
As though working through the grief and assimilating it into my life is a negative thing.
As though grief is more of an eternal roadblock than a continuing road through my life.

But it is okay… in fact, it is not only okay and normal, but it is truly good… that life continues going on, moving forward, taking new shape. It is good that our grief does not cement our feet in one solid place for the rest of our lives. It is good that someday, somehow, the Lord brings us down the road again. He continues to shape us and mold us, recreating us to some extent, incorporating our past ~including our grief~ into our new normal now & for the future.

I am not the same person I was before I suffered the grief of miscarriage.
Part of who I am is the mother of children in heaven.
My grief, my fertility struggles, my suffering ~ it does not define who I am, but it is part of who I am.

So if you are in the thickest parts of grief’s darkness ~ it may well feel like the clouds will never lift, but someday you will see the sun shining again. You will have new shades & shadows to yourself, you will see through new lenses, and nothing will be exactly the same. And because of our God who is the God of grace & redemption, that’s actually a good thing.

[Extra]Ordinary Loves

I feel like a school girl sometimes because I just totally miss my hubby while he is away at work during the day. He’s gone from just a little after 6am until a little before 6pm, and most of the time it’s only M-F.

But seriously? I spend the mornings just eagerly waiting for him to call around noon. And then I spend the afternoons anticipating him coming home and wrapping me up in a big snuggly hug when he gets home for dinner. I send him little email snippets during the days sometimes just to let him know how much he’s on my mind and how much I love him, and often times it takes some serious self-control not to just flood his inbox with love notes all day (because I think he would not appreciate that, LOL). :wub:

It’s not like I pine away all day, unable to accomplish my own work from missing him, of course. :lol: Just a desperate love for him, and a feeling of incompleteness while he’s away. I’m SO proud of the work he does, and the success the Lord gives him while he works each day. But it’s that idea of “distance makes the heart grow fonder” because even just the day hours where he is gone, my heart can’t wait to have him back with me for the evening and night hours.

I love my man & can’t believe God blessed my life with him.

~~~~~~~~~

Three of the children who bear our image are frollicking around in the front yard at the moment. Bikes and Nerf and rubber boots. Sidewalk chalk covering the legs of my toddling daughter. Children who delight in everything from chasing wild turkeys off the grass to taking communion in faith at Sunday worship. Children with joy & love for one another ~ have I mentioned how the boys call their sister, “sweetie” more often than not?! Children who love their freedom yet long for responsibilities. Children who follow in our footsteps yet still pave their own ways. Children who are so alike yet so unique.
Children who I had thought, not so very long ago, would not have been mine to raise on this earth.
Children whose lives could so easily be taken for granted, but whose lives are positively miraculous in the sense that they survived my womb while nine of their siblings didn’t. These are children who should be on billboards for the pro-life movement. Not because they survived abortion, but because they simply survived.

I would have loved them with every thread of my being even if I did not scale mountains to have them. But because I did, I love and appreciate them just that much more.
They have siblings who I have held in the palm of my hand… and I can’t tell you the utter delight it gives me that God has given me at least these three whose hands are daily held & squeezed in that same palm.

~~~~~~~~~

And then there’s my littlest love, currently hiccuping underneath the stretchy skin of my belly. I am just sitting here, amazed that I am still pregnant. It’s beyond incredible.

My little Heritage would have been a year old this week… my Fidelis would have been eight months…
A year ago we thought the door to growing our family again had been closed forever due to my immune health problems.

But here I am. Over 24 weeks pregnant with a healthy, active little boy.

This pregnancy has not been without its complications, and it has been full of anxiety. It’s anything but ordinary: it’s miraculous.
The fact that I’m pregnant today just blows my mind… God’s mercy toward me with the life of this tiny son just overwhelms me with amazement. :happytears:
I love this little boy so much! A huge part of me just can’t wait to be done being pregnant so I can start looking at him, touching his hands, kissing his cheeks, nursing him, babywearing him, watching his siblings adore him, stare at him fall asleep on his daddy’s chest. But then there is this other part of me that knows this season will pass all too quickly, and it will be gone forever. Never again will I feel jabs and rolls and hiccups from the inside. Never again will this ball-like belly be my profile when I see my shadow on the pavement. Never again will my reflection fill out my maternity clothes. So I don’t wish it away. I drink it in. I love it to pieces.

Firsts & Lasts

Right now, I have a thousand miles between myself and a painful ripping in my family.
Today, my grandpa is moving away from his wife and his home ~ his beautiful wife of 63 years who he no longer knows, although subconsciously sometimes seems to remember ~ his home since I was a toddler, where I envision him pruning roses, growing lemons & tomatoes, tenderly bringing in paradise flowers to fix with toothpicks in Grandma’s little crystal dishes to decorate their oval kitchen table with a whole collage of crystal & blooms.
Last night was the last time my grandma would get her husband dressed in his pajamas, and walk down the hallway with her hand in his toward their bedroom, to climb into bed together. He did not know it, he probably did not even know her, but she did. And thinking about that just absolutely breaks my heart.
Today was the last time my grandma would wake up in her bed with her husband warming the other side of it. This morning was the last time she would fill two bowls with cereal, and pile another bowl’s worth of fruit (bananas, peaches, blueberries) on top of each. Yesterday was the first time she had to buy half as many groceries when she made her weekly trip to Trader Joe’s.
Today will be the last time they walk out of their house together, knowing that they will come home together… today will be the first time Grandma leaves her husband in a different home and comes back to her house without him.

Sometimes death comes so suddenly that it leaves us reeling in shock and surprise.
Sometimes death comes so slowly that it just peels away at our very souls, one tiny shred at a time.

I am not there, so I get to be numbed to most of the reality of what is happening. I did not go help buy Grandpa’s new room decorations or the twin-sized blanket for his new bed. I did not cook his last dinner at home or eat his last breakfast beside him at his own kitchen table. I am not the one who has to drive him down the cul de sac and away from his home. I am not the one who has to walk back out to the car and blow him a kiss goodbye after taking him to his new home.

But as I sit here thinking about my mama and my grandma, who are the ones doing all those things, I just can’t stop crying.
I am crying for their pain.
I am crying because lasts & firsts can both be so hard.
I am crying because mortality is a harsh reality when you face it head-on.

I went to bed last night, and watched my husband fall asleep on the pillow beside me. And reality is, I do not know when I will do that for the last time. Sometimes it is easier not to know. I can’t imagine having been my grandma last night, knowing that it was her last time.

I naively think that I am closer to the first time I went to bed with my husband than the last time. I remember sleeping in my bed in my old room the night before my wedding, thinking how that was the last time I ever had to sleep alone (business trips and such don’t count!), and how glorious it would be to have someone to fall asleep with and wake up next to for the rest of my life. (And it is glorious!) I bet my grandma had those same thoughts the night before her own wedding, just over 63 years ago.

So right now, I don’t cry for Grandpa, because my mother just sent me a picture of him sitting at his kitchen table, so handsome in a blue-collared shirt with a big smile on his face, his silver hair topping him like a halo. He is happy, he is handsome, he is oblivious.
But I cry for what was & no longer is.
I cry for my mama, watching her daddy disappear into the shell of what he was, slowly & painfully saying goodbye piece by piece.
And mostly I cry for my grandma, who has not only had to suffer through losing her darling husband little by little over the last couple of years to the horrible ugly monster of Alzheimer’s, but who has had to be the one to physically care for him every day no matter how hard the battles have been ~ and now she has to be the one to sign the papers, to drop him off, to kiss him goodbye, to go home to her new reality which includes her empty bed. And the empty bed simply symbolizes so much… and it breaks my heart.

I remember saying goodbye to my grandpa last fall, the last time I saw him in person. I remember telling him that if he gets to heaven first, to tell my babies hello for me. I remember him staring deeply into my eyes and smiling and saying “I will do that.”
I remember him throughout my childhood in various ways.
One of the most prominent places he holds in my memory is at his own kitchen table (perhaps because we ate a lot of meals there together).

So I am glad for this picture of his last morning at home at his table. With his wife and his daughter.

And while I don’t know when his physical body will die and his soul will fly to heaven, today my family endures a ripping that is a kind of death. It is a step closer to Death. And it is hard, even from a thousand miles away.

 P1190784

It takes a different kind of courage
to face death when you cannot run,
when you cannot fight,
when you are pinned beneath heavy decades,
beneath the weight of life—
when  your faith really must be in Another.
~N. D Wilson, Death by Living, p45~

Seventh: Final Thoughts on Serving those with Chronic Needs

SEVENTH: FINAL THOUGHTS ON
SERVING THOSE WITH CHRONIC NEEDS

… … … … …

… … … … …

Though you may feel that no one can understand
the depth of your despair,
our Savior, Jesus Christ, understands.
~D.F.U.~

… … … … …

As we come to the final thoughts on this discussion of serving those with chronic needs in our local bodies of Christ’s people, what should we come away with on our hearts? What new insights have you seen from those who are suffering for days, months, years on end with either their obvious or invisible manifestations? What about new perspectives from four church leaders from multiple places in the United States, different churches & varied denominations? What things did you see emphasized repeatedly from the women who chimed in with ideas on how they have seen their congregations serve the suffering, or ways they individually have sought to reach out?

What stood out to you?
What themes can be found repeated throughout this series?
What ways do you need served?
What ways do you need to serve?
How can you tailor your prayers?
Where can you offer your gifts or time?
How might the Lord be calling you to sacrifice of yourself?
In what areas do you see the Lord stretching your faith here?

… … … … …

… … … … …

Above all, keep loving one another earnestly,
since love covers a multitude of sins.
1 Peter 4:8

… … … … …

I see a call toward tangible love toward our brothers and sisters in Christ.

~love your brethren with your prayers and your words but also your actions, no matter which side of the suffering coin you find yourself on personally ~ I see countless opportunities here for “one-anothering“~

I see a need for enormous grace on all sides.

~have grace with those in need ~ have grace toward those who serve ~ have grace on those who you don’t see either suffering or serving ~ none of us deserve grace (which is why it is classified as grace!), but all of us are called to bestow it liberally~

I see openings for each one of us to sacrifice more.

~there are very infrequent cases where someone may be already sacrificing to the fullest extent of what the Lord has called them to, but for most of us (especially in modern American culture), there are absolutely ways that we could deeper sacrifice for others in our finances, with our time, sharing our food or other physical possessions, praying more diligently, sending encouraging notes or making uplifting phone calls, spending an entire day per week or month simply living your life for someone else’s family~

I see opportunities for each one of us to humble ourselves and exalt others.

~as sinful humans, we are born with a grabby nature; but here we have been shown opportunities over and over again for how we can put others ahead & above ourselves and our own desires or needs ~ are you grabbing for assistance from others when maybe the Lord is asking you to simply endure your suffering for His sake with joy and peace? ~ are you grabbing at your own comforts or plans when maybe the Lord is giving you places to give up your comforts or plans for the sake of lifting the burdens of others? ~ in what ways can you (yes, you!) humble yourself and rather exalt someone else?~

I see the calling for each of us to be more like Christ.

~as Christians, we should continually be growing more and more into the image of Jesus Christ Himself, through our sanctification, so how can we open ourselves to more of His nature overcoming our selfish sinful humanity when we see people suffering around us? ~ how can we do that when we are suffering, bound to our house for endless months, or bound to a bed in home or hospital for days at a time? ~ how do you feel the growing pains of growing up into Christ your Brother, as you now look around you at the brethren who may be suffering, whether you currently know it or not?~

… … … … …

Therefore let those who suffer according to God’s will
entrust their souls to a faithful Creator while doing good.

1 Peter 4:19

… … … … …

… … … … …

So in closing, what are a few last reminders & highlights of how we can serve those in our churches who are suffering various chronic needs?

  • write notes of encouragement, whether a real card or an e-card or an e-mail
  • make a phone call to pray with someone or just check in
  • cook extra food & put it in your freezer so that you have something to share when you see a need
  • offer to make food for someone, asking if they have specific recipes that suit their dietary needs that you can use
  • ask someone if you can come to their house to cook with their ingredients in their kitchen: show up with joy, do the work, clean up even more than the mess you personally made, and bless the person not only with food in their freezer but with your cheerful presence
  • read books or browse blogs for creative ideas on blessing someone who has X physical or mental need
  • rather than ask “how are you?”, tailor the question for the person, “honestly, how have you seen Christ show up in your suffering this week?” or “I would love to hear the nitty-gritties on how your week has gone”
  • give specific offers for help ~ specific tasks you are equipped to do, and a time you know you could show up to get it done
  • give your phone number and emphasize that you will do what you can to drop what’s on your plate if something emergent comes up
  • sign up to clean homes for those who are physically unable to do it
  • sign up to fill a freezer at your church
  • rally others to work alongside you to care for someone’s yard or run their errands or babysit their child(ren)
  • drop off flowers for a random person just to brighten their day
  • leave plates of goodies on a front doorstep, leaving unannounced without making the recipient feel awkward or have the need to make small talk
  • pray diligently for people, and remind someone when you have actually prayed for them
  • don’t be afraid to make people laugh, but don’t be afraid to make people cry
  • put on a spirit of meekness & humility, and stop judging the actions or inactions of others
  • recognize that there is not a single one of us who is not needy in one way or another; but we are still called to bear one another’s burdens
  • use your time wisely and well ~ when you are serving your own family, and also when you serve someone else
  • buy a $30 gift card next time you are at the grocery store, and find someone to bless with it
  • buy things in bulk (think Costco or Winco), and then give away the excess portions (the second bottle of shampoo, the third pound of ground beef, the extra green beans you know will go bad before you eat them…) to someone in need
  • dig up perennials from your yard or garden beds, and put them in little pots to deliver to someone who can not be out in their own yard or have their own garden
  • share the extra produce from your vegetable garden or produce box with a neighbor
  • when someone asks for help, go above & beyond what they have humbled themselves to request ~ give richly and joyfully
  • if you absolutely cannot fill a need when you have been specifically asked, try to help them find someone else who can fill the need! ~ ask your spouse, ask your best friend, ask an older woman in your church, ask a church leader ~ don’t just say, “I’m so sorry I can not drive you tomorrow to your appointment” but go the extra mile and add, “but let’s go find someone together right now who is available” ~ sometimes we can not fill a need, but there are ways we can help the need be filled nonetheless
  • preach grace ~ from pulpits and from fingertips
  • take someone out to coffee just because, or bring their favorite drink to them if they are homebound
  • remind someone with physical limitations that they are invaluable, and help them find non-physically-demanding ways to serve (phone calls? prayer chain? offering to have Bible study or choir practice in their home?)
  • remind someone with mental limitations that they are invaluable, and help them find ways to serve (if you can’t leave your home, can we come to you? if being around people or noise is overwhelming, could you do some cooking for someone else? can you cook or clean for someone else, even in the midst of your own mental suffering? if you have no energy, no time, no mental capacity to do a physical thing for someone else and can honestly not even keep up with the demands of your own home & family, could you write about your suffering to teach the rest of us who can not begin to wrap our heads around the thorn in your side? can you lead online prayer chains?)
  • ask to be on a prayer list ~ offer to put someone else on a prayer list
  • try your best not to stick your foot in your mouth ~ silence or an understanding squeeze of the hand can be enough
  • if you don’t know what to say, say THAT without apology
  • ask for elders to come pray in your home or to bring communion to you ~ if you are the caretaker or spouse of someone who is bed-ridden or home-bound, be the voice & advocate of the suffering one, and request these specific things ~ even leaders of churches will need someone to graciously teach them and help peel scales from their eyes
  • don’t give up when the suffering has no end in sight
  • acknowledge that you don’t understand what the other is going through ~ either in their obvious suffering or in their lack of it
  • offer free babysitting, along with a Starbucks (or other date-type place) gift card
  • invite someone over, and ask how you can make it possible for them to be comfortable in your home (allergies, dietary restrictions, time constraints, a place to lie down, making it quiet enough by having your children watch a movie in an upstairs room or putting the barking dog far away)
  • sometimes people have to plan way ahead, so make the sacrifice of putting something on the schedule to really help & truly fellowship
  • sometimes people can not plan more than a few hours in advance, so learn how to be more flexible and invite someone over last-minute
  • take the caretaker/spouse of the suffering person out to eat, out to play frisbee, or to your home for a time of prayer
  • focus more on others than on yourself
  • before you donate items to a thrift shop (furniture, clothing, books, appliances), see if anyone in your church has need of your things ~ be willing to drop stuff off for others at their homes if they need your old washing machine, your used maternity clothing, other clothing (sometimes chronic illnesses or even the medications for physical or mental illnesses can cause unpredictable weight loss or weight gain, and it can be difficult to shuffle one’s wardrobe back & forth without emptying the pocketbook), the books you collected on depression & anxiety or autoimmune diseases, extra chairs for around their table, etc.
  • don’t be shy about asking your church leaders for assistance; whether food or prayer or home/yard chores or childcare or transportation or financial assistance… humble yourself and ask for blessings… who would give a stone when asked for bread?
  • give an extra check in your church offering for the benevolence fund
  • remind your friends that it is okay if their kids need to be watching more movies than seems preferable, during this season of suffering
  • try not to give unsolicited advice
  • pray ceaselessly for the suffering around you
  • be in it for the long haul with joy
  • share what you have, give what you can ~ just show up and be faithful with what you’ve been given
  • grace, grace, grace, grace, GRACE!!!

… … … … …

Put on then, as God’s chosen ones, holy and beloved, compassionate hearts, kindness, humility, meekness, and patience, bearing with one another and, if one has a complaint against another, forgiving each other; as the Lord has forgiven you, so you also must forgive. And above all these put on love, which binds everything together in perfect harmony. And let the peace of Christ rule in your hearts, to which indeed you were called in one body. And be thankful. Let the word of Christ dwell in you richly, teaching and admonishing one another in all wisdom, singing psalms and hymns and spiritual songs, with thankfulness in your hearts to God. And whatever you do, in word or deed, do everything in the name of the Lord Jesus, giving thanks to God the Father through Him.
Colossians 3:12-17

… … … … …

God our heavenly Father, please bless each of your children who have participated in this discussion over the last week. Please soften our hearts where we have been hardened, please humble us where we have been proud, please open our eyes where they were covered in scales, please unplug our ears where they were not listening. Teach us to love one another in word and in deed. Teach us to shower one another in grace upon grace upon grace. Make us more like Christ as we live together in local manifestations of His body.

We are Your chosen ones, O God ~ we are holy and we are beloved. Please teach us to treat one another as holy, beloved, chosen children of the Father. Please clothe us with compassionate hearts, kindness, humility, meekness, and patience! Please enable us to bear with one another, and show us how to do this with the compassion, kindness, humble hearts, meek spirits, and patient diligence that would most glorify You. When we strive against one another, when we begrudge one another for any reason, please plant a root of forgiveness in our hearts that will grow and bloom and blossom and bear sweet fruit, just as the forgiveness You have so freely offered us through Christ our Lord bears fruit in our own lives.

But above all the rest of this, heavenly Father, clothe us with love. The love of God is greater far than tongue or pen can ever tell! And this is the love that we need to imitate, that we must pray for, as we grow up as Your children into Your image. Grant us love beyond measure, so that we can be bound in perfect harmony by Your grace.

Fill our hearts with the peace of Christ, and rule us by that peace so that our homes and our relationships ooze nothing but peace. We were called to His peace in one body, and we ask You to fulfill that calling by filling our cups to overflowing with the peace of Christ. Make us thankful. Teach us to be content with where you have us, suffering and all, with thankful hearts. Put words on our lips that demonstrate thankful hearts.

Put within us the words of Christ so that His rich wisdom and understanding fills us and shapes our relationships with one another. Give us Scripture and holy words in our hearts and minds as we memorize and meditate on Your Word. Give us opportunities to teach, admonish, encourage, and exhort one another with wisdom ~ and increase our wisdom by Your grace more and more as the day of Christ’s return draws nearer. Help us grasp opportunities to sing together, to proclaim psalms and hymns and spiritual songs to one another and for one another. Fill our hearts and heads with music that glorifies You and teaches us all the more about You. Grant us thankfulness to You as we give and receive wise, godly counsel and song.

By the power of Your Spirit, O God our Father, enable us to do all things, in word and in deed, in the name of the Lord Jesus to whom we belong and in whose blood we ourselves are covered and granted forgiveness. Strengthen us to give thanks to You, Father God, through Jesus Christ our Lord, as we serve, as we suffer, as we live together in the body of Christ and as we pray for the furtherance of Your Kingdom here on earth in our own homes.

Thank You, God, for hearing our prayers and granting us grace in this conversation. To You be all glory, now and forever. Amen.

… … … … …

~part of our series, Serving Those in The Church with Chronic Needs~

Second: Resources, Opening My Eyes to See Chronic Suffering

SECOND: RESOURCES, OPENING MY EYES
TO SEE CHRONIC SUFFERING

… … … … …

I wanted to pray but had no idea what to say,
as if struck dumb by my own pain.
Groans became the only language I could use,
if even that,
but I believed it was language enough for God to understand.
~Jerry Sittser, A Grace Disguised, p43~

When the Lord put it on my heart a month or two ago to begin praying more for my friends who have particular chronic suffering (which I myself have experienced in particular, probably smaller, forms), I wanted to know how to find out more. I googled for a lot of things. I went back to some books that encouraged me in my own forms of suffering (like grief or depression) to see how they might (or might not) be pertinent for people with chronic pain, chronic illness, mental illness, etc. I read Scriptures, especially Psalms, with these friends on my heart. I wrote some prayers with them in mind. And most importantly, I asked questions. I emailed my friends (as that is the way I tend to communicate with the majority of people, but particularly with these friends), asking them questions about their suffering, about what they need, about what help they receive, about how their husbands & families & church bodies encourage them. I received a variety of responses, and getting those specific glimpses into the hearts of these women (yes, these are all women who I know with these chronic needs… and all but one are married… all but two have children to care for…) gave me particular insight into how their lives are effected by their various suffering, and how their hearts are both uplifted & downtrodden in turn.

Pain insists upon being attended to.
God whispers to us in our pleasures,
speaks in our conscience,
but shouts in our pains:
it is His megaphone to rouse a deaf world.
~C.S. Lewis~

Please participate in this conversation, by considering these links and books, by sharing this with people you know who would be challenged or blessed by these things, by commenting here with questions or experiences or additional resources, and by praying for the Lord to work even in your own family to see where suffering is around you—in yourself, in your home, in your neighborhood, in your local church body—and ask Him to grant you whatever particular grace He needs to speak into your heart.

Do you need to humble yourself to receive more assistance? Do you need to embolden yourself to ask for more assistance? Do you need to lower your expectations for what kind of help you need, wisely discerning between needs and desires? Do you need to heighten the demands you put on yourself for seeing where your hands can labor, your prayers can bless, and your gifts can be showered? Ask the Lord to open your eyes and soften your heart in whatever direction would most glorify Him—and ask Him, then, for the strength and fortitude to follow Him with joy!

…We laughed, even me,
sincerely and happily,
but yet, I still ached in my soul.
~Ben Palpant, A Small Cup of Light, p97~

Soon I will share responses from the hearts of these women themselves. We will look at some Scriptures and meditate thereon. And then we will also hear, Lord willing, from a couple various church leaders for the perspective that comes on the side of sacrificial service and rallying the body of Christ toward love and good works. But today, let’s look at these links and browse these books—see what you can glean here, whether you are bed-ridden with illness or homebound with suffering, or whether you are strong & equipped to be serving hands filled with grace to those who are, or even whether your own current station in life doesn’t necessarily allow you (honestly) to lend time or finance to the suffering around you but at least to offer prayers and encouragement through words…

My prayer today is that the Lord would prick us by His Spirit, put our roots down amongst our family & church family, grow vibrant blossoms on our vines, and drop our fruit with abandon upon everyone around us. Amen.

One of Jesus’ early and great followers,
the apostle Paul, wrote once that
it is not what we have achieved
but what we are striving for that counts.
~Jerry Sittser, A Grace Disguised, p91~

LINKS FOR THE SUFFERING & THOSE SERVING THE SUFFERING:

http://chroniccurve.tumblr.com/post/14003538415/a-chronic-christmas-gift-ideas-for-the

http://www.accessbiblestudies.com/bible-studies/the-christian-and-chronic-illness/

http://justbetweenus.org/pages/page.asp?page_id=79768

http://sickofmg.blogspot.com/2011/02/dilemma-of-church-and-chronic-illness.html

http://lacedwithgrace.com/church-chronically-ill/

http://restministries.com/category/church-resources/

http://www.faithwriters.com/article-details.php?id=44192

http://restministries.com/

http://www.focusonthefamily.com/lifechallenges/emotional-health/living-with-chronic-pain-and-illness/ministering-effectively-to-the-chronically-ill

http://enrichmentjournal.ag.org/200702/200702_108_ChronicIllness.cfm

http://invisibleillnessweek.com/2008/08/10/care-ministry/

http://thedailyprayerblog.blogspot.com/2010/09/prayer-and-chronic-illness.html

http://www.kubik.org/vcm/illness.htm

http://www.shalombewithyou.com/prayer/physical-healing/prayer-for-chronic-illness/

https://www.facebook.com/pages/Chronic-Illness-Encouragement-for-followers-of-Jesus-Christ/363753660142

http://www.focusonthefamily.com/lifechallenges/emotional-health/living-with-chronic-pain-and-illness/when-we-suffer-a-biblical-perspective-on-chronic-pain-and-illness

http://trustingjesuswithchronicpain.blogspot.com/

http://www.ucg.org/beyond-today/meaningful-hope-for-christians-with-chronic-illnesses

http://www.retropulser.com/

 

SUGGESTED BOOKS FOR VARIOUS TYPES OF (primarily longterm) SUFFERING:

A Cypress Will Grow by Amy Chai

A Place of Healing by Joni Eareckson Tada

A Reluctant Journey by Kristen Grathwol

A Small Cup of Light by Ben Palpant

Be Still, My Soul edited by Nancy Guthrie

Beyond Pain: Job, Jesus, and Joy by Maureen Pratt

Bound by Illness, Freed by Grace by Maureen Brady

Chronic Pain by Rob Prince

Chronic Resilience by Danea Horn

Coping With Chronic Illness by H. Norman Wright

Doing Well at Being Sick by Wendy Wallace

Empty by Cherie Hill

Fibromyalgia: God’s Grace for Chronic Pain Sufferers by Robert Smith

Healing Prayers by Lauren Wilder

Holding on to Hope by Nancy Guthrie

Just Show Up by Kara Tippetts

Living Well With Chronic Illness by Richard Cheu

Mended by Angie Smith

Ministering to those in Chronic Pain by Susan Gerberding

Miserable Joy by Jason Nelson

Mosaic Moments by Lisa Copen

Pain and Providence by Joni Eareckson Tada

Sick and Tired of Feeling Sick and Tired by Paul Donoghue and Mary Siegel

Spurgeon’s Sorrows by Zack Eswine

Struck Down but Not Destroyed by Douglas Wiegand

Suffering and the Sovereignty of God edited by John Piper

The Beauty of Pain by Judy Dillard

The Hardest Peace by Kara Tippetts

The Loveliness of Christ by Samuel Rutherford

The One Year Book of Hope by Nancy Guthrie

The Works of Ann Bradstreet by Ann Bradstreet

What if Your Blessings Came through Raindrops by Laura Story

When The Darkness Will Not Lift by John Piper

You Don’t Look Sick by Joy Selak and Steven Overman

… … … … …

~part of our series, Serving Those in The Church with Chronic Needs~

… … … … …

First: Introduction to Serving those with Chronic Needs in The Church

First: Introduction to Serving those with
Chronic Needs in The Church

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Part of every misery is, so to speak, the misery’s shadow or reflection:
the fact that you don’t merely suffer
but have to keep on thinking about the fact that you suffer.
I not only live each endless day in grief,
but live each day thinking about living each day in grief.
~C.S. Lewis, A Grief Observed, p9~

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People often mention how Scripture shows us Jesus loved to be with the marginalized—He is humbly involved in the lives of those whom the mainstream Jewish people wouldn’t really touch (with their prayers, their time, their gifts, or their hands). Do you know what else I find interesting about these marginalized people? Many of them have needs that are chronic, rather than acute—people with paralyzed bodies, withered limbs, leprosy, epilepsy, blindness… we don’t often know how long the people Jesus healed had been suffering with their ailments, but certainly we can deduce that many of these needs would have been chronic and longterm. These people had surely been suffering for a long time.

Matthew 9:20 tells us of the woman who had been bleeding for twelve years before she touched the hem of Christ’s garment, and received healing.
Luke 13:11 tells us of a woman who had suffered severe infirmity for eighteen years before Jesus spoke to her and took her hands, giving her new strength and taking away her infirmity.
John 5:5-6 tells us of the man by Bethesda who had been infirm for thirty-eight years, and Scripture specifically says that Jesus knew the man had suffered in this way for a long time already.
John 9:1, 20 tells us of the man born blind, who was now an adult, and had spent his life unseeing until Jesus entered his life and opened his eyes.

Are we—Christ’s people—moved with compassion for those who are weary and scattered (Matthew 9:36)? Do we have the same humble love for the people in our own local church bodies who are marginalized due to chronic needs? Those who are crippled in body or in spirit? The men, women, and children all around us who suffer diseases or injuries or ailments? People who have visible suffering? What about invisible suffering?
Sometimes suffering is obvious (like someone in a wheelchair because of a disease or injury, or a longterm well-known illness like MS or ALS or cancer), and sometimes it is very hidden (mental illness—including depression—or physical illnesses that take invisible manifestations like fibromyalgia or CFS or autoimmune diseases).
Do we see these needs? And when we see them, how do we serve them? Who is responsible for taking care of which needs? How do we discern between needs and desires? How can we bless our brothers and sisters who suffer long and hard with chronic needs?

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When I am in the cellar of affliction,
I look for the Lord’s choicest wines.
~Samuel Rutherford~

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I have a heart for those who are suffering, and God has put it on my heart recently to pray and research and write for the sake of those with needs due to chronic illness, chronic pain, chronic suffering. I have been writing and conversing with a number of women lately who suffer various forms of chronic pain and chronic illness—seeking to uncover the ways in which they have been richly blessed, and also looking to see the ways in which they would be even more deeply blessed. I have also sought out some pastors on the subject, but unfortunately, they are so busy ministering to their own congregations (which I applaud them for!) that having the time to write out specific thoughts in this way may have been too much to ask—but I did hear briefly from a couple pastors that they acknowledge this area of need, and are thankful that we are going to have this conversation here, so that we can encourage one another on toward further love and good deeds, coming alongside our brethren and our neighbors to see their needs, cover them in our prayers, and seek wisdom on any practical ways our hands can bless.

I have been given my own forms of longterm suffering (both obvious and hidden), but I can only begin to scratch the surface of the depths of suffering that so many go through—so many people I even know personally—on a regular and ongoing basis.
Since this is a subject the Lord has put heavily on my heart lately, I want to honor Him and bless my friends in any way I can on the matter. I think this is an area where churches in general probably have room to grow. And I think both those who have the chronic suffering, and those who minister to them, could always use affirmation, encouragement, and a prodding to keep fighting the good fight.

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So, over the course of (probably approximately) a week, we are going to delve specifically into the subject of serving those in the body of Christ around us who have chronic needs. We will be asking some questions to get conversations going & make every single one of us think… we will be asking more than we will answer, for sure… we will be sharing quotes and Scriptures and prayers… and we will hear personally from a handful of people I know who suffer chronically so that we can see their varied perspectives through their own eyes.

As we do this, my prayer is that we would each be encouraged and exhorted by the words of Christ to His disciples, that “Freely [we] have received, freely give” (Matthew 10:8). Please join in the conversation, please join me in praying for a humble & receptive heart, please share this series with others you know who would be mutually blessed, encouraged, & exhorted by reading along or participating.

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Suffering is God’s gift to make us aware of our contingent existence.
It creates an environment where we see the true nature of our existence—
dependent on the living God.

~Paul E. Miller, A Praying Life, p126~

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~part of our series, Serving Those in The Church with Chronic Needs~

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